A “spoonie” is a term used by people with chronic illnesses. It stems from lupus blogger Christine Miserandino who explained her lack of energy using spoons. How do you know if you’re a spoonie? We’ve scoured the Internet for some examples of what it’s like to be…
Social Clips
In this video from Rogers TV, James Altimas and his wife and caregiver, Donna Downes, talk about the harsh reality of living with pulmonary hypertension (PH). MORE: Five ways you can raise awareness of pulmonary hypertension. Daytime host Dylan Black explains that more than 5,000…
In this latest video from ChloesPHriend, popular member of the PH community, Chloe Temtchine, shares five ways to stay positive while living with pulmonary hypertension. MORE: Chloe Temtchine shares her five key elements to improving PH health. Chloe shares her tips for traveling with oxygen, which…
8 of the Most Common Lung Diseases in Women
There are many different lung diseases that vary in severity, but one thing is certain: the number of women developing and dying from lung diseases is rapidly rising in the U.S. With early diagnosis comes early treatment which can help prevent the disease from progressing too quickly. Here are some of the most common lung diseases affecting…
Are You Pulmonary Hypertension Aware?
Released on May 5 to mark World Pulmonary Hypertension Awareness Day, this video from Buns and Pearls goes over some of the basic facts about the disease. MORE: Five ways you can raise awareness of pulmonary hypertension. The film lists some of the most common…
Late-night talk show host Jimmy Kimmel recently shared that his newborn son William (Billy) underwent open heart surgery when he was just three days old. The infant was born with the rare congenital heart condition tetralogy of Fallot with pulmonary atresia. MORE:Â Seven common questions about pediatric pulmonary hypertension.
What Does a Chronically Ill Person Do All Day?
Many people with chronic diseases have what’s called an “invisible illness.” This means that although they’re very sick, they don’t have visible signs of illness so many people assume that they’re not really sick at all. MORE: Six ways you can raise awareness of pulmonary hypertension. This is a constant source of frustration for…
Being diagnosed with pulmonary hypertension can be extremely difficult. Readjusting your life after diagnosis can be tricky, but there are several things you can do to ease the transition. Educating yourself (and those around you) is one thing you could — and should —do. Official World PH Day is May 12, but…
May 5 is World Pulmonary Hypertension Day, but how does it help those who suffer from the disease? MORE: Take the “Fear the Pie” challenge for World Pulmonary Hypertension Day World Pulmonary Hypertension Day is a global event to raise the profile of this little-known lung disease.
5 Tips to Help Prevent Lung Infections
Pulmonary hypertension (PH) patients are susceptible to lung infections which can often lead to hospitalization. According to the American Lung Association, there are several things you can do to help prevent lung infections. MORE: What exactly is pulmonary hypertension? Practice Good Hygiene Regularly washing hands with soap…
8 Tips For Protecting Your Lungs From Unhealthy Air
If you have a chronic lung condition, you’ll need to protect your lungs from being further irritated by unhealthy air. We’ve put together a list of ways to help protect your lungs against unhealthy air using information from the American Lung Association. Check the daily air pollutant forecasts. …
Signs are appearing outside restrooms in the United Kingdom to advise members of the public that not all disabilities are visible. MORE: Six ways you can raise awareness of pulmonary hypertension. According to a report from the BBC, the signs are being posted to help those who have invisible…
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