Social Clips

What Is a ‘Spoonie’?

If you’re active on the Internet, particularly in groups and forums regarding chronic illness, you’ve definitely noticed the term “spoonie” being thrown around. MORE: Eighty-one-year-old to walk 500 miles to raise money for pulmonary hypertension research. Spoonie is a term coined by a chronic illness blogger,…

The Pathophysiology of Pulmonary Arterial Hypertension

https://www.youtube.com/watch?v=64xNqlWGQaQ&t=39s In this animated video from Gopal Sikder, viewers learn about the pathophysiology of pulmonary arterial hypertension (PAH). MORE: Revatio as inhaled PAH treatment is more effective than tablets now available a study finds. Pulmonary arterial hypertension is a chronic lung disease characterized by dangerously high blood pressure…

The Story Behind the PHenomenal Hope 5K Run/Walk

The Team Hope PHenomenal 5K Run/Walk is an annual event held in Pittsburgh, PA. It was established to raise the profile of the disease, support the local pulmonary hypertension community and raise much-needed funds for research. The event took place on Saturday, April 2 at Heinz Field Stadium. MORE: Three travel considerations if you…

What Exactly Is Pulmonary Hypertension?

https://www.youtube.com/watch?v=eRAGygi3iU0 In this video from the Temple Hospital, nurse practitioner, Debra Gillman explains pulmonary hypertension (PH) and some of the most common symptoms associated with the disease. MORE: Read about the treatment options available for pulmonary hypertension. Pulmonary hypertension is a type of high…

Busting Popular Myths About Depression

This video from Big Think deals with some of the common myths surrounding depression. MORE: Six ways you can raise awareness of pulmonary hypertension. Dr. Patricia Deldin from the University of Michigan Depression Center explains exactly what depression is and what it isn’t. Deldin shares that depression is an invisible illness that…

7 Common Questions About Pediatric Pulmonary Hypertension

If your child has been diagnosed with pulmonary hypertension there are probably a lot of questions going through your mind. We’ve put together a list of seven of the most frequently asked questions about pediatric pulmonary hypertension with help from the Pulmonary Hypertension Association. What causes pulmonary hypertension in…

How Pulmonary Hypertension and Scleroderma Are Connected

In this video from PAH.TV, find out how pulmonary hypertension and the autoimmune disease, scleroderma, are connected. MORE: Tracleer may delay the onset of pulmonary hypertension in scleroderma patients.  The national director of development and research for the Scleroderma Foundation, Tracy Sperry, talks about the non-profit…


A Conversation With Rare Disease Advocates