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6 Common Symptoms of Chronic Fatigue

If you suffer from a chronic illness, then it’s highly likely that you’ll experience fatigue from time to time. Fatigue is different than just feeling tired, and generally it’s not something that can be fixed with an early night or by resting for a little while. With tips from the pros at …

4 Tips for Caring for Someone With Pulmonary Hypertension

If someone you love has been diagnosed with pulmonary hypertension, you may be concerned with how to best care for them and what you need to do to ensure they maintain a good quality of life. You will inevitably become an integral part of their health care team which may be challenging at times. We’ve compiled…

Why Pulmonary Hypertension Patients Are Often Invisible Patients

An “invisible illness” is a term used for any disease or condition which is not overtly obvious simply by looking at a person. MORE: 14 invisible illnesses you may not be aware of Most people with pulmonary hypertension (PH) would be considered an “invisible patient,” meaning they’re considered healthy and able-bodied because they don’t…

Pulmonary Hypertension News: A Look Back at 2017

With the holiday season in full swing, it’s the perfect opportunity to take a look back at 2017. It’s been a year full of ups and downs, and while there were definitely quite a few low moments, there were certainly quite a few highs. To celebrate the year that was,…

Singing for Lung Health: How Singing Can Improve Your Breathing

You’re probably thinking…singing? really? But according to the British Lung Foundation, recent studies have been focusing on how our bodies respond to music and how they can use it to treat lung diseases. MORE: Six ways to help you take care of your lungs Researchers have found that there are five major benefits of singing: 1.

8 Fun Facts About Lungs

Pulmonary hypertension is a rare lung disease characterized by increased blood pressure in the pulmonary arteries that eventually makes breathing very difficult. MORE: Learn why every breath matters for patients with pulmonary hypertension Breathing is the most important thing our body does. Without lungs to breathe, we can’t live. It sounds simple,…

Little Bella’s Lung Transplant Story

Meet Bella. As you’ll see in this Texas Children’s Hospital video from 2016, Bella is a lively and bubbly 4-year-old who also happens to have had a double lung transplant. MORE: How pulmonary hypertension in newborns might be detected earlier using echocardiography Bella was diagnosed with…

Testing for Pulmonary Hypertension

Pulmonary hypertension (PH) is a rare, chronic disease that occurs when pulmonary arteries that carry blood from the heart to the lungs become narrow and tough, forcing the right side of the heart to work much harder to pump blood back to the lungs. The result ranges from shortness of breath to heart…

7 Pulmonary Hypertension Risk Factors

Pulmonary hypertension (PH) is a chronic lung disease that occurs when your pulmonary arteries become narrowed or blocked, causing increased blood pressure in the lungs and forcing the heart to work harder. Here are some risks factors for developing PH according to the Mayo Clinic.  1. Age: The average age at…

What Is the Six-Minute Walk Test?

The six-minute walk test is used to monitor patients with chronic lung diseases such as pulmonary hypertension (PH). It’s often part of the screening and diagnosis process and patients with the condition may have to have the test regularly to monitor the disease’s progression. MORE: Seven interesting facts about pulmonary hypertension According to …

Pulmonary Hypertension 101: Causes, Symptoms, Diagnosis and Treatment

According to the Cleveland Clinic, pulmonary hypertension (PH) is rare pulmonary disease. In PH patients, arteries become more narrow, making it difficult for blood to flow through the vessels between the heart and the lungs, increasing the blood pressure in the pulmonary arteries. MORE: The difficulties of diagnosing pulmonary arterial hypertension What causes…


A Conversation With Rare Disease Advocates