Social Clips

Getting Diagnosed With Pulmonary Hypertension: Shani’s Story

Because pulmonary hypertension (PH) is a rare and progressive disorder, patients often feel isolated and lonely. In this video, 25-year-old Shani shares her story with pulmonary hypertension, a disease she was diagnosed with when she was just 9 months old. MORE: Shani shares 10 tips for traveling safely with pulmonary hypertension Shani has been dealing with…

How to Stay Active With a Lung Condition

Being diagnosed with such a complex and mysterious lung condition such as pulmonary hypertension (PH), can be extremely devastating, especially if you don’t know what to expect. You may start wondering if you’ll be able to maintain your routine and whether or not you’ll be able to do regular…

Debunking 5 Major Myths About Lung Transplants

Professor Daniel Chambers from the Queensland Lung Transplant Service at the Prince Charles Hospital in Australia debunks myths about lung transplants for pulmonary hypertension patients and other patients with lung problems. Read about five of the myths here: Myth #1: Lung transplantation is an experimental treatment. Lung transplant was considered “revolutionary” when it…

7 Nutrient-Packed Recipes PH Patients May Want to Try

Eating a balanced diet is sensible advice for anyone, but it’s even more important if you have pulmonary hypertension (PH). The body needs vital nutrients and vitamins in order to keep healthy, fight infections and perform at its best. When you are already ill, eating well can help ease the symptoms…

4 Possible Pulmonary Hypertension Complications

Pulmonary hypertension (PH) is a chronic lung disease that occurs when your pulmonary arteries become narrowed or blocked, causing increased blood pressure in the lungs and forcing the heart to work harder. It usually affects people ages 20 to 60, but children and older adults can develop PH, too. Women…


A Conversation With Rare Disease Advocates