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7 People With Chronic Illnesses Who Used a Body-Shaming Experience to Raise Awareness

Coping with a chronic illness is challenging, both physically and emotionally. Often the illness can change the way we look, making us feel self-conscious or embarrassed. This is not helped by people commenting on physical changes like weight gain or loss, or other body or facial changes. MORE: Seven nutrient-packed recipes PH patients might want…

7 Diseases That May Cause Pulmonary Hypertension

Pulmonary hypertension (PH) is a chronic lung disease where the blood pressure in the lungs is dangerously elevated. This forces the right side of the heart to work much harder to pump oxygenated blood back into the lungs and can lead to heart failure. In many cases of pulmonary hypertension,…

How Liver Disease and Pulmonary Hypertension Are Connected

There are many reasons why a person may develop pulmonary hypertension (PH), one of which is needing a new liver. MORE: Portopulmonary hypertension seen as an important prognosis parameter in liver transplant candidates People who are suffering from liver disease with portal hypertension — high blood pressure in the…

What Is Familial Pulmonary Hypertension?

Familial pulmonary hypertension (or hereditary pulmonary hypertension) accounts for around 5 percent of cases. It is also known as primary pulmonary hypertension. MORE: The pathophysciology of pulmonary arterial hypertension The disease occurs three times more often in women than men and can develop at any age. It is often difficult…

How Pulmonary Hypertension Is Managed

In this video from GSK, Iain Armstrong, the chairman of the Pulmonary Hypertension Association U.K., talks about how pulmonary hypertension (PH) is managed. MORE: What to know about pulmonary hypertension and lung transplants Armstrong, who is also a nurse consultant, shares that he’s been working…

8 of the Most Common Lung Diseases in Women

There are many different lung diseases that vary in severity, but one thing is certain: the number of women developing and dying from lung diseases is rapidly rising in the U.S. With early diagnosis comes early treatment which can help prevent the disease from progressing too quickly. Here are some of the most common lung diseases affecting…

9 Pulmonary Hypertension FAQs

Living with pulmonary hypertension can be quite difficult, especially if you’re a newly diagnosed patient. It’s a rare condition, so patients often have a long list of questions they need answered. To save you some time, we’ve put together nine of the most frequently asked questions concerning…


A Conversation With Rare Disease Advocates