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Pulmonary Hypertension and Clinical Trials

Clinical trials are well-designed studies which collect information about new treatments for diseases and disorders. Most of the time, this means medications, but clinical trials can also test for other things, such as stem cell therapies, surgical techniques, tests for diagnosis, medical devices, as well as…

Fight Against PAH: This Is Meredith’s Story

Our (ph)ight against pulmonary arterial hypertension (PAH) is directed at funding research and development of novel diagnostic tools to advance early detection and diagnosis. We are dedicated to educating the gatekeepers of medicine as to the early warning signs of PAH – and providing them with the necessary tools…

Pulmonary Hypertension Lifespan

Pulmonary hypertension is a progressive disease, which means that it worsens as time advances, despite the fact that it can be faster or slower depending on the patient and characteristics of the disease. There is currently no cure for the disease, but there are treatments that…

Pediatric Pulmonary Hypertension: Emma’s Story

This video is the uplifting story of brave Emma and her mother Beth, both battling an incurable lung disease in their own way. Imagine you’re a scientist who has spent her entire career working to cure fatal lung diseases, and suddenly your 5-year-old daughter is diagnosed with one. This was…

15 Classic Christmas Songs

Dean Martin – Rudolph The Red-Nosed Reindeer https://www.youtube.com/watch?v=gI8jeWjZSAg Eartha Kitt – Santa Baby Queen – Thank God It’s Christmas   Bing Crosby – White Christmas   Frank…

10 Modern Christmas Songs

Band Aid 30 – Do They Know It’s Christmas?   Michael Bublé – It’s Beginning To Look A Lot Like Christmas   Mariah Carey feat. Michael Bublé – All I Want For Christmas Is You https://www.youtube.com/watch?v=AFvRf8PfpKw…

13 Christmas Movies

1. Elf 2. How the Grinch Stole Christmas 3. It’s a Wonderful Life 4. Home Alone 5. National Lampoon’s Christmas Vacation 6. A Charlie Brown Christmas…

Pulmonary Hypertension and Hypoxia

Pulmonary hypertension (PH) is a rare, but life-threatening, disease which affects the pulmonary arteries, making them become narrowed and thickened. These vessels, which are responsible for transporting blood from the right heart ventricle to the lungs, become obstructed due to the disease, leading to high blood pressure in the…


A Conversation With Rare Disease Advocates