Social Clips

Raising Awareness for Pulmonary Hypertension

“The Israeli Pulmonary Hypertension Association was formed to help patients and their families cope with this all-encompassing disease. Unfortunately, Rachel is not alone and many other patients and their families suffer from similar financial hardship due to this crippling disease.” Learn more about Pulmonary Hypertension: http://bit.ly/1K4oewk…

Pulmonary Hypertension Signs and Symptoms

According to the NIH, signs and symptoms of pulmonary hypertension (PH) may include: Shortness of breath during routine activity, such as climbing two flights of stairs Tiredness Chest pain A racing heartbeat Pain on the upper right side of the abdomen Decreased appetite As PH worsens, you may find…

Sleeping Well With Pulmonary Hypertension

According to Pulmonary Hypertension Association, everyone benefits from a good night’s sleep, but it’s essential for those with PH. Check out the tips below to help you get your Zzzzs. Maintain good sleep habits: Stick to a regular schedule during the day. Try to wake up and go…

Pulmonary Embolism: Joanne’s Story

Joanne Giacalone, a 22 year old nurse, collapsed suddenly on the job at was rushed to North Shore-LIJ’s Long Island Jewish Hospital. Arriving at the ICU in an advanced state of cardiac distress, she was quickly diagnosed with a pulmonary embolism — a clot that travels through the heart…

Novel Muscle Cell Involved in PH Pathogenesis

Researchers at the Yale Cardiovascular Research Center have identified a specialized cell type involved in pulmonary hypertension pathogenesis. The research paper, entitled “Smooth muscle cell progenitors are primed to muscularize in pulmonary hypertension,” was published in Science Translational Medicine. Pulmonary hypertension (PH) is…

Pulmonary Hypertension: Who Is At Risk?

According to the NIH, the exact number of people who have pulmonary hypertension (PH) isn’t known. Group 1 pulmonary arterial hypertension (PAH) without a known cause is rare. It affects women more often than men. People who have group 1 PAH tend to be overweight. PH that occurs with another…

Pulmonary Hypertension: FAQs

According to the Pulmonary Hypertension Association, these are some of the most frequently asked questions for family and friends of PH patients: My loved one was diagnosed with pulmonary hypertension. What do I do now? What questions should I be asking my loved one’s medical team? What sorts…

Pulmonary Hypertension Glossary

According to the Pulmonary Hypertension Association, these are some of the most important words on the PH glossary, starting with the letter “A”: -A- ACE inhibitors: ACE is an acronym for Angiotensin Converting Enzyme. ACE inhibitors are blood pressure medications that are prescribed by your doctor to treat…


A Conversation With Rare Disease Advocates