Why symptom tracking is important for managing PH
It make take some practice, but it pays off over time
“How often do you experience heart palpitations or chest pains?”
This question is one of the first I hear every time I have an appointment with my pulmonary hypertension (PH) specialist or other members of my healthcare team. Palpitations, chest pain and tightness, shortness of breath, and other symptoms are important to track for those of us with PH, and it can be beneficial to know that information when we see our medical providers.
We can also record any triggers or patterns that may either alleviate or exacerbate our symptoms. That can help us better understand how to manage PH and effectively communicate with our healthcare team.
Some common triggers for PH symptoms include physical exertion, changes in weather or altitude, stress and anxiety, certain foods or medications, and exposure to extreme temperatures. By identifying these triggers, we can avoid them or minimize their impact on our health.
On the other hand, certain activities or habits may help to decrease PH symptoms. These might include regular exercise (under the guidance of a medical professional), relaxation techniques such as deep breathing or meditation, maintaining a heart-healthy and balanced diet, and staying hydrated.
It’s also important to note that our symptoms may change over time, so it’s essential to regularly track and communicate any changes with our healthcare teams. That lets them know when to adjust our treatment plans and ensure optimal management of PH.
In addition to tracking patterns, symptoms, and triggers, it’s also important that we prioritize self-care, such as getting enough rest and sleep, seeking emotional support through therapy or support groups, practicing good hygiene to prevent infections, and managing stress.
Find the best method for you
There are many ways to do this sort of tracking, but they come down to paper versus electronics. I’m very much a paper person, including when I plan. Because of that, it’s easiest for me to keep track by writing quick notes in my planner, which I always take to medical appointments. Some find it easier to keep track of them on a phone app.
Tracking might be challenging at first, but try it for a week or two. I journaled for the first few years after my PH diagnosis. Now, I tend to track symptoms only when I start new treatments, get discharged from the hospital, or experience new symptoms.
Managing PH isn’t just about taking medication and following the doctor’s orders. It’s also about taking care of yourself and being your own advocate. Your healthcare team is an essential part of this self-care journey. Find the best method for you, and don’t be afraid to make adjustments along the way. Remember, each person’s journey with PH is unique, so do what feels suitable for you and your body.
Do you track your PH symptoms? If so, I’d love to hear your thoughts in the comments below.
Note: Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Hypertension News or its parent company, Bionews, and are intended to spark discussion about issues pertaining to pulmonary hypertension.
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Comments
Hildi
Yeap, One of the most important priorities in every patient best interest. Our condition usually requires multidisciplinary specialist intervention management care to maintain balance for adequate functioning of our compromised affected organ system involved. Sometimes, acute over imposed to chronic disease are involved in in the particular presentation of the health hardship that is complicating the response of our body in ways that diminishes our ability to respond with adequate physiological mechanisms. Therapeutic modifications are necessary, however, decisions are decisive and utterly important in our complex condition in which body reserve capacity to recovery maybe diminished . Therefore, our best advocate is WISDOM to achieve acceptable quality of life during times of extraordinary high challenges from the medical professionals in charge of our care. Reason why tracking and chronological awareness of symptoms, procedures, physical changes, emotional support and all those milestones of our PH journey are important. Smile, make beautiful memories and practice gratitude because kindness brings happiness ❤️❤️❤️🎉🎊
Jen Cueva
Hi Hildi, thanks for taking the time to read my column about symptom tracking. Yes, you are correct, so many multifaceted approaches to managing PH. With the healthcare team of more than a few, it takes wisdom, patience, and tracking as well as learning our body and knowing when something is "off". This is where I find tracking helps. Let's not forget the mental and emotional toll. That's why it's so incredible to have a support system like the PH News forums so we can connect with others who, "get it".
I love your positive outlook and to remind us all to smile and spread kindness as we keep PHighting. You are so thoughtful for taking the time to leave your thoughts after reading this piece. This is why it's s important that I share my experiences, in hopes it will benefit others.
Enjoy the Labor Day weekend and see you in the forums soon. Take care, my PHriend.