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Are you attending PHA’s International PH Conference?
PHA’s 2018 International PH Conference and Scientific Sessions will bring together nearly 2,000 people with PH (both newly-diagnosed and long-term survivors), families, caregivers, PH-treating health care professionals and researchers. PHA hosts the event once every two years, and 2018 marks the 13th Conference.
This year Conference is June 29 to July 1, 2018, in Orlando, Florida, at the Renaissance Orlando at SeaWorld. You can still register for Conference here.
I’ll be at this year’s PH Conference as a photographer to document this incredible three-day event. I’ve attended eight of the previous 12 Conferences as a patient, beginning in 2000 immediately after my diagnosis. At past Conferences I’ve met lifelong friends, learned strategies to improve life with an infusion pump, and grown hopeful in informational sessions about ongoing trials. Being surrounded by thousands of people who relate to my daily challenges feels incredible.
After receiving a heart-lung transplant, I wasn’t sure I would ever attend Conference again. Most of the sessions wouldn’t apply to me and I might feel out of place knowing I no longer have the same disease. In the past, my parents and sister have accompanied me and benefitted from sessions geared toward caregivers. Though they will miss connecting with the other families we’ve grown close to over the years, they’ve each taken too much time off work and school to support me through my transplant recovery to make the trip (not to mention my sister lives in Germany now). It will be a new experience to go without them this time.
I’m excited for the opportunity to give back to the community that inspired me to keep fighting. I can’t wait to capture the magic!
Are you attending this year’s Conference? Please find me there and introduce yourselves! I’ll be the one pointing a camera at you.
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