Viewing 8 reply threads
  • Author
    Posts
    • #32041
      Colleen Steele
      Keymaster

      In recognition of PH Awareness Month in November I am overseeing a project called 30 Days of PH. This is something Jen Cueva started for us two years ago. It’s an opportunity to highlight different voices within our community. Contributions are all voluntary, but keep in mind that we’re only looking for short posts (No more than 400 words).

      You can check out last year’s archives here. https://pulmonaryhypertensionnews.com/tag/30-days-of-ph/

      The goal is to feature a person with PH (or family member or partner to someone with PH) every day in November. This is a space for you to write about your experience with a particular topic, experience, or theme; and how PH has influenced that. This is a reflection on your experiences.

      At the end of November our goal is to have a collection of different approaches to different facets of life with PH, that could (hopefully) reach and help manifest an optimism or empowerment for readers. The way you wish to wield and share that experience is up to you.

      Regarding a topic, is there anything in particular you’d like to write about? Some suggestions are: independence and PH, family life, employment and PH, managing care, etc. Let me know if any of those sound interesting, or if you have your own ideas. Feel free to scroll through last year’s archives for inspiration.

      The stories will be published throughout November but I am hoping to have them scheduled by the end of October. If you are interested in participating please contact me at [email protected] I will then provide you with more information and guidance.

    • #32055
      Jen Cueva
      Keymaster

      This is so exciting, @colleensteele! I look forward to the stories each year come November.

      Thank you for doing such a PHenomenal job with this last year. You bring so many perspectives to this project.

      I hope that many of our forum members will want to participate. It is simple and offers a time to share your PH journey.

    • #32134
      Colleen Steele
      Keymaster

      Hey everyone! Nudge-nudge…don’t forget about 30 Days of PH. We have so many awesome members who share within the forums on a regular basis. I hope several of you will reach out to me and offer to participate in this project. The PH community could really benefit from hearing part of your story.

      Former participants, please take a moment to comment on why you shared your PH journey through 30 Days of PH and what it meant to you.

      If interested, please comment here, send me a direct message or email me at [email protected]

    • #32139
      Jen Cueva
      Keymaster

      Hi @colleensteele, I, too, am hoping that several of our members will want to participate. Not to call anyone out, but what about you, @s-steppins, @mainegal, and @cdvol3gmail-com? I know each of you often participates and will enjoy sharing your experiences with PH.

      I worked on this project the first year that we had it, and I thoroughly enjoyed working with everyone. Each person who participated was extraordinarily generous and commented how they hoped to inspire and remind others in the PH community that they are not alone.

      This project is always something that we here at PH News are incredibly proud of, and Colleen has done a fantastic job at leading this each November.

      So, who wants to participate? Let’s share our stories.

    • #32145
      Carol Volckmann
      Participant

      Hey Jen and Colleen, I did write up something and sent it to Colleen. Use it if you want, edit it or? I think your topic is great. Thank you both for being such great supporters. Love to you both!

    • #32157
      Jen Cueva
      Keymaster

      Hi @cdvol3gmail-com, my apologies if we both called you out. I knew that you could write an interesting little story with your vast experience with PH, scleroderma, and now an ostomy surgery.

      I am confident that once @colleensteele sees it, she will let you know if anything else is needed. Thanks for all of your encouraging posts for us all here in the forums, sweet lady.


      @wheeldog
      , and @catbrown, this is the topic I am referring to for the short 30 days of PH stories.

      We are both here to answer any questions and help anyone if needed. We have the best forum members, and I think we need to let others get to know y’all a little, too.

    • #32162
      Colleen Steele
      Keymaster

      I’m so excited that so far @cdvol3gmail-com and @mainegal have offered to participate in “30 Days of PH”! I emailed both you ladies back so check it when you have the chance.

      That leaves 28 more spots available so please consider it! Everyone who has participated over the past 2 years found that sharing their story in this form was very rewarding.

      Please let me know if you are interested!

    • #32165
      Jen Cueva
      Keymaster

      Thanks, ladies, @cdvol3gmail-com, and @mainegal. I also think that @wheeldog is interested, @colleensteele. I look forward each year to this event. It is such an emotional experience to watch take-off and the excitement each participant has to share their unique perspective.

      • #32170
        Colleen Steele
        Keymaster

        Yes, @wheeldog has contacted me and would like to participate. As we know, there appears to be more woman then men diagnosed with PH so it’s very valuable for men to share their PH stories. Would any of our other male PH members, whether patients or caregivers, like to participate?

    • #32178
      Colleen Steele
      Keymaster

      @scollin @s-steppins @rgiustin and @Terry I sent you all a direct message. Please take a look at it when you get the chance. Thank you!

Viewing 8 reply threads
  • You must be logged in to reply to this topic.

©2021 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or    

Forgot your details?

Create Account