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Striking a Balance With Terminal Illness
How do you spend your time when you don’t know how much time you have left?
Living with a single-digit life expectancy for the past 19 years (haha) I’ve often wondered if I’m making good use of my time. When I was struggling in college I wondered why I was even working toward a degree if the odds were stacked against me actually completing it.
I know that I would live differently if I knew how much time I had left. For instance, if I knew I had months to live, I would focus on short-term goals and completion rather than a 5-year business plan. I would move in with my boyfriend and not worry that we might not get along after a while.
But nobody knows how much time they have left. Those of us with chronic illness have the advantage of recognizing our own mortality. Many of us spend time thinking about how it would be if we died this month or this year. We therefore can act with more intention.
I probably “treat myself” more often than most of my friends. I never know what tomorrow will bring, so if it makes me feel good now, I’m buying it (looking at you, buttery croissant and cute pair of earrings). At the same time, I have to accept that I may live many many more years than my family, my doctors or I expected, and so I should maybe figure out what a 401K is (just kidding, I can’t have one and retain my insurance). Whoops.
Reflecting on this dilemma today, I decided I need to strike a balance between my long-term decisions and short-term decisions. “What would I do in this situation if I knew I would live to be 85?” And then, “What would I do if I knew I would die this year?” Maybe the answer is somewhere in the middle. I think having this thought process is important. I can’t live in fear that I am going to die very soon. However, I make better choices when I consider my limitations. Knowing that my life will stop suddenly one day, I think more about opportunity cost, about what I value in life, and about the legacy I’m creating.
Mostly it makes me want to be nicer to other humans. If this is the last thing I ever type, I want it to be loving. I’m sending love out to all those reading this. If my 10 PM musings resonate with you at all, please comment and share. I’d love to hear how you cope with terminal illness and/or the human condition.
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