This topic contains 16 replies, has 6 voices, and was last updated by  Brittany Foster 2 weeks, 4 days ago.

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  • #16049
     Barbara Malcom 
    Participant

    Has anyone tried CBD oil for COPD, PH or Gastroparesis?

  • #16050
     Barbara Malcom 
    Participant

    Hey Brittany,

    I have AFib also and was in the hospital and they did a heart cath and found the PH. He has never treated it as he said it wasn’t bad but I read that the sooner it is detected the better it can be treated.

    • #16052
       Brittany Foster 
      Keymaster

      Hi Barbara,
      Have the doctors talked with you about what they believe is causing it? Do they think that it is an underlying heart condition beacause of the a-fib too? Are you on any type of heart medications for the a-fib ? Maybe they are thinking that it could help improve the pressures. You should definitely ask your doctors why they don’t have you on medications specific for PH. Sometimes, like with my case, it’s because they are treating the underlying condition that is causing the increase in the pulmonary pressures. I would be interested in knowing what their response is !

    • #16164
       Chris LaRose Mev 
      Participant

      Barbara, i’ve tried CBD Oil just once, i didn’t notice any help although i didn’t take daily. There are so many available and at different costs, how do we know what to try? Also, they’re not regulated by FDA, so you don’t know what your getting is what you’re paying for and they aren’t cheap depending on the “strength” you get.

      chris

      • #16168
         Brittany Foster 
        Keymaster

        Good points Chris,
        It’s hard to know what brand to “trust” because there are a lot of people who advertise for CBD products that may just be trying to market it and getting money for advertisements from it. (I know a lot of celebrities have recently been doing this or creating their own line of CBD products). I wouldn’t even know who to turn to and ask about this. Maybe a holistic doctor or specialist would be able to steer you in the right direction for this and make suggestions for good brands and the amount that you as an individual would need. I think it’s best to get an expert opinion and not just from your own online researching. Because you’re right, you really don’t know what’s out there and what’s in the products that you’re using.

  • #16051
     Barbara Malcom 
    Participant

    I am taking Bethesda Hemp Oil and have been for 3 months. It hasn’t helped my breathing but has helped knee pain. The company says they will have different kinds. I haven’t researched any other type. I was hoping someone had been taking a particular type that helped.

    • #16053
       Brittany Foster 
      Keymaster

      Haven’t found anything that helped with the breathing so much, but might have helped me a little by loosening up some of the tightness in my chest wall and restriction. I know that there are a lot of yoga type exercises and stretching that works on the chest muscles and back muscles to help with the work of breathing. You should youtube some videos for yoga that help open up the chest or yoga for breathing ! This might help loosen the workload to breathe that many of us have to manage.

  • #16094
     Jimi Mcintosh 
    Participant

    I want to try CBD Oil, it has been approved for 10 medical conditions, but it is illegal to grow it, possess it or to purchase and bring into the state.
    With the emphasis and attention being given prescription meds, insurers, legislators, federal government regulations, I fear that my only relief
    from this pain is CBD, WALMART, somebody medical insurers and several other dispensers, are taking away our options.
    When I hurt everything is fuzzy and bad, I feel that my doctors know whether or not a patient is addicted.

    I know people that have autoimmune diseases, that swear to the effectiveness of CDB. I have talked with PH, patients in CA, NV, and CO, that claim using CBD Oil for their PH
    makes life worth living.

    • #16095
       Brittany Foster 
      Keymaster

      Hi Jimi,
      when you are talking about the “legalization” of it, are you referring to THC which is what is found in marijuana? I know they have laws about marijuana use depending on the state and THC but wasn’t sure there was regulations on CBD because most people can purchase it online and it doesn’t give the same “high” type feeling as THC. But there are CBD benefits that I have heard about including inflammation and pain relief !

  • #16136
     Jimi Mcintosh 
    Participant

    Sorry, I get things confused at times, I was referring to the THC. I say it it benefits people with real needs, legalize it, people are dying while politicians are attaching personal agendas.

    • #16143
       Brittany Foster 
      Keymaster

      I totally agree with you, Jimi! THC has helped so many people ! If it’s legalized in a few states already I believe it will be legalized everywhere one day. (Hopefully!)

    • #16169
       Chris LaRose Mev 
      Participant

      Jimi, have you tried CBD Oil, it’s legal in all states and has 0 THC; the trick is to find 1 which works for you and insurance doesn’t cover. Discussing this might help us to hear about 1 which has provided some relief of our PH symptoms/side effects.

      chris

      • #16171
         Brittany Foster 
        Keymaster

        True Chris!
        Did anyone use a specific brand or strength that seemed to help them? I can ask one of my friends today who uses it for her connective tissue disease.

  • #16179
     Gayle Meagher 
    Participant

    I just started using CBD oil to help with shingles nerve pain. It is really helping!!I would definitely recommend getting it from a trusted source. I got mine from a Health food store that is run by a pharmacist. I also have a Naturopath that was a pharmacist for 20 yrs recommend it.

    • #16180
       Brittany Foster 
      Keymaster

      Definitely a great suggestion, Gayle . I would refer to a pharmacist who has worked with CBD products before or a naturopath medicine specialist when it comes to CBD and different brands. There are so many that are advertised online and honestly I would rather get it from a source that is trusted and one that has worked with patients with this type of disease before. I would tell everyone to mention this to their PH doctors too especially because you never know the effects this could have on different medications. The doctors and pharmacist/naturopath medicine specialists would know best and they should work together on this !

  • #17502
     DAVID PETERSON 
    Participant
      I have been using CBD oil mix’s with
      TH at night and it helps me sleep longer by reducing my pain from Lupus and waking from apnea, The CBD oil by itself helped during the day without any side effects, but if you add thx to it, it works better. Especially on my systemic Lupus.
    • #17507
       Brittany Foster 
      Keymaster

      Hi David,
      Thank you for your feedback about CBD oil. I actually recently am trying CBD oil (without the THC in it ) during the day. I have had gummies with THC before and they helped reduce a lot of my night sweating I was having because of my apnea. I am glad that it also helps you and helps to relieve some of the nighttime pain! How long have you been using it for ? Did you notice effects almost immediately or does it take a bit to kick in?

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