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    • #29203
      Jen Cueva
      Keymaster

      Last week, we celebrated sixteen years of my PH diagnosis. Because PH affects the family as a whole, I decided to interview my hubby and caregiver, Manny. I was so happy that he had so much to say. I am sharing here in the hope that it will offer something for everyone. Patients, caregivers, and family members check it out.

      Please give it a read, and let’s talk about it. Our caregivers are the unsung heroes.

    • #29208
      Susi Steppins
      Participant

      That was a great read Jen.
      Thank you for posting this.
      I will ask my husband to read it as well.
      Your husband sounds wonderful.
      Mine is wonderful as well.
      We are lucky.

      • #29218
        Jen Cueva
        Keymaster

        Thank you, @s-steppins. I am happy that you found this helpful. It certainly helps to have a supportive partner through all of this. I agree; we are fortunate. Thanks for sharing your thoughts. Let me know what your hubby thinks.

    • #29210
      Colleen Steele
      Keymaster

      @jenc congratulations to both you and Manny on 16 years kicking PH butt! Manny did a great job answering your questions. I have no doubt this column will pull at heartstrings and help others going through what the two of you have. So many great quotes in this column!

      • #29219
        Jen Cueva
        Keymaster

        Thanks, @colleensteele. I am so happy that this is helpful for many. I was unsure how caregivers would react. I am fortunate that he was willing to share that much.


        @cdvol3gmail-com
        , thanks as always for your support and kind words. I read these comments to Manny, and he was speechless. I am happy that Dick resonated and now knows that he is NOT alone.

        Thanks, @kristine; it truly does affect the family as a whole. Last year my daughter did a piece, and I can share that here for you.

    • #29213
      Carol Volckmann
      Participant

      What a inspiring column Jen. As Collen so aptly put … congratulations to you and Manny for kicking PH butt for 16 years! I know you two will continue to kick butt.

      Manny, thank you for being so open and honest with your feelings – it touched both Dick and myself. You helped Dick realize that he is not alone in this fight as my caregiver, best friend and the love of my life. Thank you.

    • #29215
      KRISTINE
      Participant

      Jen,
      What a touching way to show and represent all the sides that can be affected within a family unit from this disease. I found it to be very poignant. Thanks for sharing.

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