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Friendships Formed With People Living With A Different Rare Disease
I have a a friend battling a rare disease and know a few parents whose children are battling a rare disease other than PH. I feel a close bond with these individuals because we share an, “I totally get it,” vibe when discussing day to day challenges.
Have you formed a special bond with someone battling a rare disease that is not PH? Was it the commonality of battling rare diseases that brought you together? How do you help each other and what experiences have you discovered that you have in common?
#whatmakesmerareph
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