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Gastroparesis
When I asked, “What keeps you active?” I mentioned my symptoms of gastroparesis seem to worsen on days when I am more sedentary. I wonder how many of our members with PH have similar symptoms?
My gastroenterologist diagnosed me with gastroparesis after a gastric emptying test showed that only 15 percent of my breakfast had left my stomach after four hours. 90-100 percent is normal so I have a severe case.
Has a doctor diagnosed you with gastroparesis?
Unfortunately I never had a gastric emptying study before my transplant so my team never recorded a baseline for me. Now I wonder if I already had some issues with delayed stomach emptying. That might explain why I’ve adapted more than they anticipated. My team wanted me to have surgery to prevent further complications from the delayed food, but the surgeon I saw refused to operate on me, citing that my reflux is well controlled (confirmed by another long test).
Gastroparesis is a common complication after heart or lung transplants, but I am curious how many transplant patients might have signs of it even before the operation. Do you ever feel nauseated or particularly full after eating? Have you considered doing a gastric emptying study?
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