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How Are You Promoting Rare Disease Day?
Rare Disease Day is February 29th. The month of February leading up to the 29th is a time to raise awareness among the general public and decision-makers about rare disease and their impact on patients’ lives.
How have you been or what are you planning to do to celebrate this opportunity to let the world know about Pulmonary Hypertension and how it has impacted your life? Is there something you have done in the past to promote Rare Disease Day that worked well?
Please share with us.
https://www.rarediseaseday.org/article/what-is-rare-disease-day
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