December 6, 2019 at 11:01 am #22008
Sometimes with PH and other chronic illnesses that go along with it we may have a hard time regulating body temperature. I am usually overly cold vs being overly warm. It has been hard for me to keep warm and stay warm, especially as the weather starts getting more “Winter like” and the temperature starts dropping.
When I go outside to walk my dog in the cold, I always make sure that I have a hat, scarf, gloves (I prefer mittens because they keep my hands warmer), and a nice big coat with a hood. When I am going to be outside for any length of time then I also have some hand warmers and foot warmers with me. As soon as I get that cold feeling it’s like I just can’t shake the shivers no matter how warm my body gets.
What helps you stay warm and KEEP warm either in cold climates or just in general? Do you find yourself being cold a lot?
December 6, 2019 at 4:51 pm #22010Carol alexanderParticipant
Yes iam always cold at night I have a electric blanket
I will be cold until spring
December 9, 2019 at 10:22 am #22021
Carol and Colleen,
I WISH I could use an electric blanket. With my pacemaker, I have to stay away from anything electrical like that, including electrical seats that massage your back. LOL I used to have one of those and then was told by my electrophysiologist to stay away from those! But they certainly would come in handy if I had an electrical blanket for my car to keep me warm when I get in and it’s too cold in the winter. I know some people who just plug them into the outlet in the car and stay nice and toasty!
December 10, 2019 at 10:11 am #22034Donna LambroParticipant
Wait until you are old enough for hot flashes. I can’t even wear sweaters anymore.
December 10, 2019 at 10:35 am #22039
Funny that you say this ! I actually get hot flashes from being in menopause. Yes, I am in menopause and went into menopause at 27 years old. I have a condition that I was born with that caused my reproductive system to be scarred and as I got older I had my tubes and ovaries removed. All was removed last year at 27. I am in menopause but use an estrogen patch at the lowest dose to help keep some of the symptoms at bay. Even though the hot flashes and night sweats just get overbearing sometimes ! I am sure you can relate ! What do you do to cool off!?
December 10, 2019 at 11:40 pm #22050Rebecca TalkieParticipant
Interesting. I have been a “freeze cat” for a very long time. I wander the house dressed in regular clothes and a fleece jacket. My kids home are kept cooler and I am always cold when visiting. I used to use an electric blanket but the mattress I have in my new home is some sort of microfoam which says not to use them. I am about ready to ignore the instructions this year. I have so many blankets piled on me that it is tiring. I have been through menopause twice ( long story ) and I barely noticed hot flashes the first time because it was during the winter. The second time I never felt hot, just sweated a lot. My family makes fun of me but are used to me in hoodies when they are taking layers off. I never considered it was connected with my circulation or the Pulmonary HTN.
December 11, 2019 at 1:48 pm #22056
I know a lot of people who are young too that struggle with problems with circulation due to congenital heart defects and they are always cold too. Cold hands, cold feet, and the type of people who need a sweater as soon as it gets the tiniest bit chilly in the summer months. I am definitely like that and get cold super easily. It is always harder for me to get warm when I’m freezing vs cooling off when I’m hot!
December 15, 2019 at 9:33 pm #22109Gayle MeagherParticipant
I keep a fleece jacket in my car year-round. I have never been so painfully cold. I thought it was from coumadin; but does PH cause it? It is especially when the humidity is low. Restaurants are especially cold in the summer. Thankfully I can let my dogs out the back door into the back yard.
December 16, 2019 at 12:12 pm #22117
Funny that you mention that. I also notice that about restaurants and public places when they blast the A/C in the summer. I notice that my lips will end up turning blue or white around them when it is cold and with a tan that look is a lot more noticeable especially because the rest of my face has good color!
December 19, 2019 at 1:54 pm #22220AubreyParticipant
I stay cold most of the time. During the Summer I rarely run my ac and drive with Windows down about 95% of the time. During the Winter I burn fires in my fireplace which distributes heat through the vents throughout the entire house. I use to use an electric blanket but since I wear a subcutaneous pump I found that one of the heat elements rested right where my site was so I stopped using one. Cover wise a comforter or quilt nothing too heavy but not too thin.
December 19, 2019 at 2:48 pm #22227
I excessively sweat way too much when I have too heavy of a blanket. It is weird because usually through the day I am extremely cold and can’t seem to warm up, but at night is when my body temperature rises a lot and I end up sweating and having to put the room down to a really low temperature in order to not sweat too much.
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