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Tagged: advocacy, awareness, Rare Disease Day 2021
Rare Disease Day is on February 28th. PH is one of many rare diseases. In honor of Rare Disease Day, let’s challenge ourselves to learn about a rare disease other than our own.
Do you know someone living with a rare disease other than PH? Share the name of the disease with us and what you know about it.
Go to the BioNews main page for a list of other rare diseases they cover. If you know someone living with one of the rare disease share the link with them and encourage them to join the forum.
Let’s practice what we preach and advocate not just for PH, but for all rare diseases.
Here is a link to my column about Rare Disease Day 2021.
Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
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This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.