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    • #34292
      Katie Did
      Participant

      My name is Katie- I am 71 years old.  Though overweight I felt I was in decent health.  I go to our Y (Moline,Il) several times weekly.  They were doing B/P checks and girl said she heard a flutter- at regular doctor appt-mentioned it- EKG showed Right Branch Bundle Block.  Doc said maybe I should have stress test and echo.  It was a nuclear two appt test.  Showed mild tricuspid regurgitation and mild pulmonary hypertension.  I guess I’m lucky it was diagnosed right away- but nurse told me, says I should continue exercising and she will see me at my August appt.  I have so many questions.

    • #34301
      Jen Cueva
      Keymaster

      Hi @genekatie, welcome again. I’m sorry you have reason to be here. I can relate to having many unanswered questions. I did share a Find a Doctor link on your welcome message a bit earlier.

      The mild PH is related to the correct branch bundle block. Do you have symptoms of PH? Here’s a group of topics that discuss PH symptoms and side effects of PH treatments that you can look through to see if anything interests you.

      What type of exercise do you do? Is this something you were already doing before this diagnosis?

    • #34306
      Colleen Steele
      Keymaster

      @genekatie I’m sorry you have reason to be here but I am happy you found us.

      My son no longer has PH because he received a heart and double-lung transplant 7 years ago. A year ago an EKG showed a right bundle branch block. We basically told not to worry about it but every time I hear someone else say they have it AND PH…I worry.

      Does your doctor believe the RBBB has contributed to your PH or are they separate from each other?

      We actually have topic going regarding bundle block if you want to have a look at what has been shared so far and comment if you have anything to add. Just click on the link below.

      Do You Have Right Bundle Branch Block?

       

    • #34310
      Katie Did
      Participant

      I haven’t seen my doctor yet since I was diagnosed.  Researched PH and found that fenPhen was a possible cause.  I took fenPhen for 6 months in 1996.  Could it just be affecting me now?
      I do get more out of breath than I used to / but moved from split level to one level and figured I was no longer in shape for stairs.
      I have been taking water exercise for almost 20 years and riding a bike at Y.

      • #34313
        Colleen Steele
        Keymaster

        @genekatie I think I had heard something in the past about a Fen-Phen and PH connection. Is your doctor a PH specialist? I would highly recommend seeing one of he/she isn’t. Let me know if you would like a link to help you find one.

    • #34319
      Katie Did
      Participant

      Someone sent me a link for the PH doctor- but it would not open.  Yes- please send another.
      Thank you!

    • #34323
      Jen Cueva
      Keymaster

      Hi @genekatie, yes, PH can undoubtedly be linked to Fen-PHen- they also think mine was. I shared my PH story below. Click the link to read more. This was my possible link since I did take it after my daughter was born, who is in her late 30s. My PH doctors have disagreed at times, but no other causes came back as a possible cause. So, the Fen-Phen was a possible link for me.

      Why It’s Difficult To Share My PH Story- Jen

      Also, I would suggest you see a PH specialist at a PH Center if you’re near one and get in ASAP. Here is that find a doctor link again; click on the link below.
      PHA Find A Doctor Link

    • #34354
      Jen Cueva
      Keymaster

      Hi @genekatie, were you able to click that link to Find a Doctor that I shared above? Please let us know how we can best support you.

    • #34364
      Katie Did
      Participant

      Yes- closest is University of Iowa- an hour away- but my husband sees 2 doctors there- so not an issue.  Do I need my doctor to refer me?  I am trying to understand my issues and then making appt with my regular doctor.  As far as the RBBB being part of my PH- have not seen my doctor since diagnosed.

    • #34374
      Jen Cueva
      Keymaster

      Hi @genekatie, if you could call and have the doctor who diagnosed you send your info over with a referral to that PH clinic, it may help things move along quicker.

      But, in the meantime, if you notice any increased symptoms and need to be seen, I would suggest going to the ER at your local hospital. Is that where you were diagnosed? I worry about your RBBB.

      Hopefully, you can get in within too long of a wat. It seems all is backed up, especially our healthcare system.

      I’m grateful you have your husband with you. Do you have other family and loved ones nearby for support? Please let us know how we can best help you.

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