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Advice for Newly Diagnosed Patients
Whether you are new to pulmonary hypertension or further along in your journey, please join this discussion and share tips that helped you through the initial diagnosis stage, as well as questions you had, or have now.
I was only six years old when I was diagnosed so I was oblivious to much of the turmoil my parents experienced. Connecting with other patients helped me and my family. In this column post I write about attending a Conference the week after starting intravenous Flolan. Experiencing a fire alarm in a hotel with other patients taught me the lesson to always have backup medication ready to go in an emergency.
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