Whether you are new to pulmonary hypertension or further along in your journey, please join this discussion and share tips that helped you through the initial diagnosis stage, as well as questions you had, or have now.
I was only six years old when I was diagnosed so I was oblivious to much of the turmoil my parents experienced. Connecting with other patients helped me and my family. In this column post I write about attending a Conference the week after starting intravenous Flolan. Experiencing a fire alarm in a hotel with other patients taught me the lesson to always have backup medication ready to go in an emergency.
Pulmonary Hypertension News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.