Rare Disease Week on Capitol Hill, Washington, D.C. is wrapping up today. I have never attended but I have friends who make a point of going every year. From what I hear it is worth the trip and time to speak up and be heard.
Have you ever attended Rare Disease Week on Capitol Hill? Share the experience with us.
Hey Colleen! I have heard of this and I also have heard of many in the congenital heart disease community going to Capitol Hill to get awareness and funding for CHD. It would definitely be something that I would be interested in going to one day ! It has been hard for me to travel lately but DC isn’t too far from me and would be a car drive away or a bus. Definitely something I would love to plan to go to one year!
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