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    • #23277
      Colleen Steele
      Keymaster

      rare disease day

      Rare Disease Week on Capitol Hill, Washington, D.C. is wrapping up today. I have never attended but I have friends who make a point of going every year. From what I hear it is worth the trip and time to speak up and be heard.

      Have you ever attended Rare Disease Week on Capitol Hill? Share the experience with us.

      http://www.rareadvocates.org/rdw/

    • #23283
      Brittany Foster
      Keymaster

      Hey Colleen! I have heard of this and I also have heard of many in the congenital heart disease community going to Capitol Hill to get awareness and funding for CHD. It would definitely be something that I would be interested in going to one day ! It has been hard for me to travel lately but DC isn’t too far from me and would be a car drive away or a bus. Definitely something I would love to plan to go to one year!

    • #23291
      Colleen Steele
      Keymaster

      Brittany, I hope you get to go sometime in the future. You would have so much to contribute.

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