September 13, 2022 at 10:26 am #35811
We wanted to share a list of common acronyms and terms used within the greater PH community. Here is a list that Colleen and I compiled to get us started.
*PAH: pulmonary arterial hypertension
*SOB: shortness of breath
*6MW: six-minute walk test
*PFT: pulmonary function test
*RHC: right heart catheterization
*LHC: left heart catheterization
*EKG/ECG: electrocardiogram (both terms are used)
*CT Scan: computed tomography
*MRI: magnetic resource imaging
*CHF: congestive heart failure
*PVD: peripheral vascular disease
*CKD: chronic kidney disease
*CTEPH: chronic thromboembolic pulmonary hypertension
*COPD: chronic obstructive pulmonary disease
*PE: pulmonary embolism
*PVD: pulmonary vascular disease
*CTD: connective tissue disease
*CREST: term used to describe a multisymptom connect tissues disease(calcinosis, Raynaud’s phenomenon, esophageal dysmotility, sclerodactyly, and telangiectasia)
*Spoons: term used to talk about the amount of energy one has; see The Spoon Theory
*PHriends: friends within the PH community
*PHamily: another name for our group of PHriends
*TX: often refers to transplant; some also use this term for treatment.
What other acronyms or terms do you hear in the PH community? Are there any that you have found your own acronyms for? Let’s talk about this.
**Added to our list:
*POC: portable oxygen concentrator
September 13, 2022 at 11:34 am #35824
September 13, 2022 at 7:11 pm #35835
September 14, 2022 at 2:39 pm #35847
September 15, 2022 at 4:38 pm #35857
@JenC, thank you so much for getting this together! Perhaps add POC portable oxygen concentrator .. I had no idea what that was until we got one hahaha.
September 19, 2022 at 9:33 am #35864
September 22, 2022 at 4:57 pm #35938
Thanks @JenC, we are continuing to recover covid… Bry continues to sleep sleep sleep.. he is just zapped of all energy and I continue to cough cough cough.. and wish I could sleep hahaha. Overall can’t complain feel very blessed we never had to go to hospital, but now I have to keep reassuring him its okay to sleep.. (he still thinks he needs to take care of me, but nothing he can do for a cough haha) Hope you and Manny are doing well this week and deciding on your halloween costumes!
September 23, 2022 at 12:25 pm #35942
September 23, 2022 at 3:18 pm #35947
@Colleensteel, thank you, yes it is .. I do have some patio relaxing planned and a sleeping in … provided my cough allows for it lol
September 27, 2022 at 2:14 pm #35962Missy Kasbaum StormParticipant
Please add PTE Pulmonary thromboendarterectomy. It often offers great improvement or even a cure to CTEPH.
September 28, 2022 at 7:26 pm #35969
September 30, 2022 at 9:10 am #35998V.R. PetersonParticipant
Another one is BPA (Balloon Pulmonary Angioplasty). It’s a procedure for CTEPH patients. You can read more about it here: https://health.ucsd.edu/specialties/heart-vascular/pulmonary-hypertension/pages/bpa.aspx
September 30, 2022 at 10:07 am #36005
Hi @mamabear007, that’s another great addition. I love the additions that y’all have. I am planning to create a master list and probably a column that will include this list, too.
Your link will also help others who want to learn more about the BPA procedure. Well done, and welcome back, sweet lady.
- You must be logged in to reply to this topic.