This topic contains 2 replies, has 2 voices, and was last updated by  Colleen Steele 4 months, 3 weeks ago.

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  • #18145
     Colleen Steele 
    Keymaster

    What do you consider a good Pulmonary Hypertension day? How do you rate yourself to determine what your capabilities will be each day? Share with us what your health description when you are at your best. How often do you manage good days like this?

  • #18152
     ronald cole 
    Participant

    I certainly understand the good PH day and the other days ( bad) Ph day. We all plow through all days, but it feels so go on good days to be able to think straight and get some things done. I think, for me, a good ph day is after I have gone into rem sleep, and had a great previous night. When I have tried the PH, along with sleep deprivation, make for terrible exhausting days. This Disease is insidious, we all plan to get things done, then we wake up, and it is exhausting to even think about things, rather than doing anything. I am just writing here because I have not written lately. I am so happy that my Pal Britanny is ok, would like to get a real-time update on here and as I am going through some tough times here, it is so good to hear from or read about people I can identify with. Be well to everyone here who I genuinely care about.
    Ron Cole USMC

    • #18153
       Colleen Steele 
      Keymaster

      It is good to hear from you Ron but I’m sorry to hear that you having a hard time. I understand how frustrating it is, PH drains your energy and makes you feel so tired and yet getting a good nights sleep is difficult. When you are having a good day what do you like to do? Do you have any plans for the 4th of July? Brittany is doing well and I know she will update you as soon as she reads your post.

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