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    • #24972
      Colleen Steele

      Today was, May 5th, was World PH Day. Due to social distancing requirements you probably didn’t participate in any big projects for this day, but did you make use of social media? I re-posted a picture of my son from 8 years ago. His cheeks were flushed from  vasidilators and he was wearing his Flolan backpack.

      My post read, “Today is World Pulmonary Hypertension Day. My son is one of the many faces of PH. It’s a disease that wears a mask. To look at Cullen you might focus on his rosy cheeks, but that healthy looking glow is actually a PH flush. How he looks and how he feels are often two very different things. Doctors are taught: “When you hear hoof beats, think horses, not zebras.” Pulmonary hypertension is a medical zebra. Just as a zebra sounds like a horse, PH often looks like something more common. Many PH patients are misdiagnosed with COPD, asthma, sleep apnea or other common ailments. On average, it takes a PH patient three years to be accurately diagnosed and by then a lot of damage has already been done. If you could simply help spread awareness that would be a huge step in fighting this disease.”

      Then I shared links for more information about PH.

      Here is the World PH Day link to give you ideas…the day isn’t over yet. 

    • #24976
      Jen Cueva

      Thanks, @colleensteele. I just came on to talk about World PH Day a bit since it slipped my mind this morning. I usually also try to spread more awareness today. I think this pandemic; I lost track of time.

      I know that because this is a worldwide event, organizations around the world participate. Like Colleen mentioned, this year, the activities were done online and virtual, including fundraiser events by PHA.

      This year, one wat to share awareness on social media was by sharing the hashtag, #PHoreverThankful. This is to show appreciation for the medical professionals who specialize in PH. I shared this on my Facebook earlier today thanking my PH team. Did y’all do anything to help raise awareness today?

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