Mike Naple (he/him) lives in Washington, D.C., but calls San Diego, California, home. Mike was diagnosed with pulmonary hypertension in 2016. He also manages living with interstitial lung disease, sleep apnea, scoliosis, and a stutter. These chronic conditions are mostly invisible except for when Mike uses oxygen therapy while engaged in rigor exercise or activity. Mike is a public affairs and communications professional who still works full time. He is excited for readers to join him as he navigates the intersections of disability, chronic illness, rare disease, public policy advocacy, and living with PH.The pain caused my right knee to seize with every step. As I moved through the Indianapolis hotel room that morning, the day’s busy schedule simmering in the back of my mind, I knew I had to listen to…
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When I make plans to go to a concert, amusement park, or sporting event, my first thought turns to accessibility issues. It’s unfortunate, but with today’s heightened security and limits on what you can bring into a venue, getting…
Summer, to quote Paulette from “Legally Blonde 2: Red, White & Blonde,” “makes me want a hot dog real bad!” When I picture scenes of summers past, I think of family and friends enjoying backyard barbecues, beach…
The springtime is when I miss running the most — when the weather starts to warm a little and folks lace up their shoes, go outside, and get a boost of endorphins. Save for one scary moment in…
Eight years ago, I meant to bid winter adieu from an all-inclusive beach resort. Instead, I welcomed spring from a hospital bed. I went on a trip — that’s for sure — just not the relaxing and restorative one…
In her classic 1990s song “Ironic,” Alanis Morissette sings about spoons. Describing life’s little ironies, the Canadian singer proclaims, “It’s like 10,000 spoons when all you need is a knife.” Hey, if Morissette doesn’t need any of…
Do you know about pulmonary rehabilitation? Maybe you’ve participated in a few sessions or you have a loved one who did. I didn’t know about these programs until after I was diagnosed with pulmonary hypertension (PH).
Former “Grey’s Anatomy” star Katherine Heigl cracked a joke at the Emmy Awards ceremony that I can’t get out of my head, and not because it was particularly funny. Commenting on the show’s legacy during a reunion bit…
While most people who home in on their health at the start of a new year think about gyms, diets, and a “Dry January,” I’m focused on my oxygen levels, doctor appointments, and exams. These are needed…
When you struggle to breathe, yet fail to understand why, it can feel like you’ve lost your way in a dark wilderness. It’s scary and isolating, and you have nary a map, flashlight, or proper diagnosis to help…
While I take a fair amount of medication to manage my pulmonary hypertension (PH), sometimes the hardest pill to swallow is admitting when I fall short with my treatment plan. Earlier this month, I was at a…
Do you have trouble relaxing? That might seem like a silly question given that summer vacations are in full swing. But I’m asking because of my own ongoing quest to better relax as part of my treatment plan…
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