Why Setting Boundaries Is Essential When Dealing With PH
Do you struggle to create boundaries to protect your health? Do others say that you are using your chronic illness as an excuse? If so, you are not alone. Learning to say no and…
Worth the PHight — Jen Cueva
Jen Cueva lives in San Diego, California, with her husband and mini schnauzer, Zoé. Jen worked in nursing before the script changed upon her diagnosis of pulmonary hypertension (PH), group 1, in 2005. Advocacy has been essential to her life. Her passion is to instill hope and remind others in the PH community that they are not alone. To do this, she serves as a forum moderator for Pulmonary Hypertension News and in her weekly column she delves into the roller coaster of emotions that accompany PH. It is powerful and meaningful to her to have this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey. Together, we PHight stronger!
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Now, more than ever, we must unite for our future
Recent news headlines have sparked significant concern among those of us in the pulmonary hypertension (PH) and other rare disease communities. The massive budget and staff cuts across multiple federal agencies are particularly…
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Learning My Limitations and Planning Ahead Makes Summer Enjoyable
Something about sunshine boosts my mood. Do you find that to be true, too? For me, warmer months bring to mind fun memories of childhood traditions. When I was growing up, my family had…
Celebrating 2 Years of This Column and Working From Home
Let’s celebrate! Come on, y’all, join me. Now, are you curious what we’re celebrating? This week, I celebrate two years of writing my column, “Worth the PHight.” I’ve mentioned before that I started…
Reminding Myself It’s Important to Unplug the Gadgets and Rest
Do you find yourself scrolling through emails or multitasking when you sit down to rest? If you can’t seem to stop working or focusing on tasks, you are not alone. Our society…
Finding Time for Dates With Your Partner
As humans, forming quality relationships is essential to our well-being. If you are like me, the pandemic has tossed a wrench in our relationships, including the romantic ones. Do you…
When PTSD Creeps in After a Traumatic Hospitalization
Living with pulmonary hypertension (PH) is no easy feat. Unfortunately, frequent hospitalizations are a part of life. No one wants to be hospitalized, especially if previous visits were…
Dealing With Grief During a Pandemic: A Tribute to My Cowboy
Grief and loss have been common throughout this pandemic. According to a research article published last July in Proceedings of the National Academy of Sciences of the United States of America,…
Let’s Pursue the Workplaces We Deserve Despite Having Chronic Conditions
The last five months have been bumpy for my family. Back in November, my husband, Manny, and I both got COVID-19. I was hospitalized for…
Amid COVID-19 Anxieties, Remember That Fear and Courage Can Coexist
As I sit down to write my column for Bionews, the parent company of this website, I think about you, my readers. While I strive to write about various topics, I…
How ‘Little House on the Prairie’ Helped Me Through Texas’ Recent Disaster
When we think about natural disasters here on Texas’ Gulf Coast, we usually think about hurricanes. But as 2021 took off, we found ourselves dealing with an arctic winter blast instead.
My Husband Reflects on Life, 16 Years After My PH Diagnosis
Sixteen years ago, I was lying in a hospital bed, unsure just how much my life and my family’s lives were about to be turned upside down. As a…
My Next Step in Recovery Is Taking a ‘Less Is More’ Approach
It’s no secret that the world is tough. When juggling its chaos, we often feel pressured to do more, and we quickly lose sight of what is most important.
