Did you know that September was Pain Awareness Month? This year, the U.S. Pain Foundation’s awareness campaign focused on encouraging people to develop a personalized pain management plan. With my pulmonary hypertension (PH) and coexisting illnesses, developing my own pain management plan has been somewhat complicated. But I am…
Worth the PHight — Jen Cueva
Jen Cueva lives in San Diego, California, with her husband and mini schnauzer, Zoé. Jen worked in nursing before the script changed upon her diagnosis of pulmonary hypertension (PH), group 1, in 2005. Advocacy has been essential to her life. Her passion is to instill hope and remind others in the PH community that they are not alone. To do this, she serves as a forum moderator for Pulmonary Hypertension News and in her weekly column she delves into the roller coaster of emotions that accompany PH. It is powerful and meaningful to her to have this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey. Together, we PHight stronger!
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Driving to a doctor’s appointment recently, I pulled up to a red light, where a bumper sticker on a nearby car caught my eye. Framed by purple hearts, it read: “A high pain level day is also a low stupidity, low tolerance day.” As someone managing chronic pain due…
A while back, I posted in the PH News Forums about my fear of judgment. I wrote about living with PH and feeling like I am being judged. At times, I feel like a reality star. I picture the TMZ crew and paparazzi following me around. In reality, I…
After 15 years with a rare and chronic illness, I have learned much about navigating life and chronic disease. Pulmonary hypertension (PH) is complex and challenging to predict. If you are like me, lacking control over your day is frustrating and anxiety-inducing. But despite those unpredictable days, we…
“Everyone knows they’re going to die, but nobody believes it. If we did, we would do things differently.” – “Tuesdays with Morrie” by Mitch Albom Maybe it is because of my work in hospice care, but talking about death and dying doesn’t bother me. Many others, however, are…
“You look so good.” “What’s wrong with you now?” “But you’re too young to be on oxygen.” “Wow, you don’t look sick at all.” “But you went out last night.” If I had to guess, I’d bet that…
The song “In My Daughter’s Eyes” by Martina McBride hits me heavy every time I hear it. I always dedicate this song to my daughter, Kayla. If only I could see myself in my daughter’s eyes. As a mom, I have always loved my daughter beyond measure, and…
According to the Anxiety and Depression Association of America, nearly 40 million people in the United States experience an anxiety disorder in any given year. If you have pulmonary hypertension (PH) and anxiety, you already know this struggle. Anxiety affects us in more ways than we ever thought possible.
“When thunder rolls through my life, Will you be able to weather the storm? There’s so much I would give ya, baby.” While these lyrics to Pink’s “Love Song” aren’t about chronic illness, they remind me of the roller coasters we encounter in our lives. I am…
Since my recent hospitalization, I am not allowed to drive for a while. This may seem like no big deal to some, but for me, driving is my little bit of freedom; it’s my independence. Usually, I only drive for small distances near my house. Some days, this is…
“Life is tough, my darling, but so are you.” – Stephanie Bennett-Henry My husband pushed me in my wheelchair through the main hospital entrance. My pulmonary hypertension (PH) medical team wanted me to avoid chaos in the emergency room. I am grateful that he made my health…
“Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.” – Matthew 6:34 I’m noticing that my pulmonary hypertension symptoms are raging throughout my body. For those who are unaware, stress can exacerbate PH and its symptoms. For…
If I asked you which three words you find most difficult, how would you answer? Some may say, “I love you.“ Others may say, “there’s no cure.” But “I need help” are the three most difficult words for me to say, maybe because I’ve never been one to ask…
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