Let’s Pursue the Workplaces We Deserve Despite Having Chronic Conditions
The last five months have been bumpy for my family. Back in November, my husband, Manny, and I both got COVID-19. I was hospitalized for several weeks and not expected…
Worth the PHight — Jen Cueva
Jen is a columnist and forum moderator for Pulmonary Hypertension News Today. Jen worked in nursing before the script changed upon her diagnosis of PH in 2005. Advocating and meeting those with PH has always been an essential part of her life. Her passion is to instill hope and remind others in the PH community that they are not alone.
In her weekly column, she delves into the roller coaster of emotions that come along with PH. Having this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey is meaningful and powerful for her. Jen lives in Southern California with her husband. Together, we PHight stronger.
Featured Post
Finding a Way to Address Mental Health Setbacks
Lately, I’ve realized I’m in a funk and don’t know how long I’ve been going through this season of my life. I feel overwhelmed. But is it connected to my cross-country move last year? Or perhaps I continue…
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Amid COVID-19 Anxieties, Remember That Fear and Courage Can Coexist
As I sit down to write my column for BioNews, the parent company of this website, I think about you, my readers. While I strive to write about various topics, I hope to touch on ones…
How ‘Little House on the Prairie’ Helped Me Through Texas’ Recent Disaster
When we think about natural disasters here on Texas’ Gulf Coast, we usually think about hurricanes. But as 2021 took off, we found ourselves dealing with an arctic winter blast instead. Because I am now on…
My Husband Reflects on Life, 16 Years After My PH Diagnosis
Sixteen years ago, I was lying in a hospital bed, unsure just how much my life and my family’s lives were about to be turned upside down. As a nurse, I thought I…
My Next Step in Recovery Is Taking a ‘Less Is More’ Approach
It’s no secret that the world is tough. When juggling its chaos, we often feel pressured to do more, and we quickly lose sight of what is most important. With a rare disease like…
Sharing My Struggles as I ‘PHight’ Through Recovery From COVID-19
After several weeks in the hospital due to complications from COVID-19, I couldn’t wait to go home. On the day of my discharge, I thought the healing process from that and other complications from coexisting illnesses wouldn’t…
Each PH Journey Is Unique, and It’s Not a Competition
Online support groups for rare diseases like pulmonary hypertension (PH) are essential spaces that offer people comfort. Patient forums and social media groups also can be places of support. I am involved with the…
I Lived a Christmas Miracle in the Middle of a Pandemic
Christmas has come and gone. Didn’t it seem a bit surreal? For me, and I’m sure for many of you, too, last year was unique in more ways than one could imagine. But we…
How Our Family’s COVID-19 Illnesses Have Been Going
Sometimes life refuses to go according to plan. Having pulmonary hypertension (PH) and coexisting illnesses only adds to this. Not that we needed to throw our lives off-balance any more, but it happened. I now have COVID-19. I’ve had…
Moma and Me: We’re in This PHight Together
“Without you, there would be no me. I am everything reflected in your eyes. I am everything approved by your smile. I am everything born of your guidance. I am me only because of you.”…
How a Traumatizing Birthday 3 Years Ago Inspires Joy for Today
Growing up, Moma would bring Halloween-themed treats to my class on my birthday. Pumpkin-themed goodies and plastic spider rings were among the items she included in each bag. Hyperactive kids bounced around, filling up on all of those sugary…
As the Holidays Approach, It’s OK to Say No
After dealing with a pandemic for more than eight months, many in my area are growing restless. I can’t say I haven’t felt the same way at times. But what I find most disturbing is when people pretend that…
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