Jen Cueva lives in San Diego, California, with her husband and mini schnauzer, Zoé. Jen worked in nursing before the script changed upon her diagnosis of pulmonary hypertension (PH), group 1, in 2005. Advocacy has been essential to her life. Her passion is to instill hope and remind others in the PH community that they are not alone. To do this, she serves as a forum moderator for Pulmonary Hypertension News and in her weekly column she delves into the roller coaster of emotions that accompany PH. It is powerful and meaningful to her to have this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey. Together, we PHight stronger!
Managing pulmonary hypertension (PH) for 20 years has not only shaped my life, but it’s also allowed me to connect deeply with a resilient and inspiring community. Over the years, I’ve witnessed firsthand…
Read more
Living with a rare disease like pulmonary hypertension (PH) presents unique challenges. Balancing work, your personal life, and your health can feel overwhelming for both patients and their caregivers. If you find…
“Never get a chronic illness; it’s really inconvenient for other people.” I stumbled upon a meme with this quote while scrolling through social media last week, and, wow, did it hit home! Can you…
As I opened my email inbox, a headline instantly caught my eye: “Massive heat wave heading for USA next week.” This got me thinking about how heat affects those of us with pulmonary…
With warmer months on the horizon, many of us eagerly await the fresh fruits and vegetables they bring. I’m one of those people who can’t wait for the fresh produce season. It benefits the…
In previous columns, I’ve shared about my ongoing struggle to balance managing pulmonary hypertension (PH) with other health issues like chronic pain. Both conditions require constant attention to ensure optimal health…
Are you or your partner managing pulmonary hypertension (PH)? Does it make going out on traditional dates difficult? If so, don’t worry; I’ve got you covered. Date nights are essential to any…
I’m often in awe of my body’s resilience. Imagine this: The windows are wide open, a gentle breeze dances through the room, and warm Southern California sunshine filters through the blinds, casting patterns…
As the temperature climbs, many of us are itching to soak up some sun and make memories with our loved ones. But if you have pulmonary hypertension (PH) like me, you may often…
My alarm screams at 7 a.m., and in a sleepy rebellion, I hit snooze, chuck my phone aside, and dive back under my covers. I’m gearing up for the day like a warrior preparing…
Most people focus on the physical challenges of living with a rare disease like pulmonary hypertension (PH). However, conversations about mental and emotional health don’t get enough airtime, in my opinion. If…
Nestled in my cozy swing chair on the patio, I’m soaking up the brisk wind that playfully tosses my hair. I’m listening to the sweet melody of my wind chimes, a thoughtful gift from…
The pulmonary hypertension (PH) community is buzzing with excitement! It’s not every week that the U.S. Food and Drug Administration (FDA) approves two new treatments for a rare disease like PH. This…
Get regular updates to your inbox.
