Jen Cueva lives in San Diego, California, with her husband and mini schnauzer, Zoé. Jen worked in nursing before the script changed upon her diagnosis of pulmonary hypertension (PH), group 1, in 2005. Advocacy has been essential to her life. Her passion is to instill hope and remind others in the PH community that they are not alone. To do this, she serves as a forum moderator for Pulmonary Hypertension News and in her weekly column she delves into the roller coaster of emotions that accompany PH. It is powerful and meaningful to her to have this opportunity to play a role in helping others become more informed and educated so they are more empowered in their journey. Together, we PHight stronger!
Recent news headlines have sparked significant concern among those of us in the pulmonary hypertension (PH) and other rare disease communities. The massive budget and staff cuts across multiple federal agencies are particularly…
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“God gave burdens; he also gave shoulders.” — one version of a Yiddish proverb When loved ones become unable to care for themselves, the entire family can go through a heart-wrenching experience.
Shortness of breath is one of the most common symptoms of pulmonary hypertension (PH). It can have many triggers, and if you’re a patient just starting to learn about PH, you might…
If you haven’t heard about the advancements in potential treatments for those of us in the pulmonary hypertension (PH) community, hold on to your seats! I recently spoke with a dedicated, well-known…
Since my pulmonary hypertension (PH) diagnosis, I have been labeled a high-risk patient. Because it’s a rare disease, PH can be challenging to diagnose, treat, and manage. And with several…
I settled on the couch, the warmth of my cozy, heated vest wrapped around my aching body. But in that moment, even prescription pain medicine failed to bring relief. The clock on my MacBook…
Fall has always been my favorite season. Unfortunately, San Diego doesn’t quite have the enchanting fall foliage that other places do. Instead of a vibrant cascade of leaves, it’s more like a few scattered…
Did you know? According to the National Institutes of Health, millions of Americans each year selflessly provide unpaid care for loved ones with chronic or severe health conditions like pulmonary hypertension (PH).
“How are your focus and concentration? Do you need help to stay engaged while reading, writing your columns, or watching movies?” These were the questions my psychiatrist posed to me during our recent…
What turns a house into a home? My therapist posed this question during a recent session. Initially caught off guard, I found myself pondering its depth. Eventually, I realized it was an exploration worth…
When the late afternoon rolls around and I’m ready to wind down, my body often has other plans. These moments seem to bring out the worst of my pain, and I find myself…
To the lady who glared at me and muttered under her breath as I pulled into a disabled parking spot: Why not approach me and ask me why I parked there? I’d gladly explain…
Have you ever wondered why some people openly share their health struggles while others keep them to themselves? Before jumping to conclusions and assuming it’s all about seeking attention, let’s take a moment to…
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