Photo courtesy of Carol Volckmann Day 1 of 30 This is Carol Volckmann’s story: Trusting your gut, which is crucial with any disease, is more than just being your own advocate. I have learned how important it is to not only trust your instincts, but to do your research.
30 Days of PH
Photo courtesy of Shirley Craig Day 28 of 30 This is Shirley Craig‘s story: Pulmonary hypertension came into my life over 32 years ago … and I’m still here, surprised and very thankful! My family, faith, doctors, and PH family has…
Day 30 of 30 Days of PH Topic: Don’t Stop Believing This is Shannin’s Story @Shanninstromhenry Zoe Henry is a sassy 12-year-old who has had PH her entire life. She was born with a Congenital Diaphragmatic Hernia and spent her first 3 months in the NICU. She…
Day 29 of 30 Days of PH Topic: Dealing With The Elephant In The Room This is Skarlette’s Story @skarletteisdead In December 2015, I was diagnosed with pulmonary hypertension and heart failure. My diagnosis did not come easily. I’d been struggling for…
Day 28 of 30 Days of PH Topic: What PH Has Taught Me This is Jacque’s Story @jacque.wilkinson Even with all the negative that comes with this disease, it has taught me so many things. First, it taught me to slow down. I was an…
Day 27 of 30 Days of PH Topic: Caring for a Child with Pulmonary Hypertension Photos by Nila Buchanan Photography This is Kim’s Story I’m a mother to two fantastic children via adoption. My oldest is a pretty typical child and my youngest is a…
Day 26 of 30 Days of PH Topic: Life Before and After PH This is Karen’s Story @karensawyer3384 My life before IPAH: Hairstylist, Salon owner, traveled, attended concerts, and hair shows. But in 2013, I blacked out on the way to the bathroom. I was…
Day 25 of 30 Days of PH Topic: Surviving PH and Carey Fineman Ziter Syndrome This is Cody’s Story @cody_da_man My PH story is similar to other patients, but I am also extremely different from the rest. My sister and I are the…
Day 24 of 30 Days of PH Topic: My Girlfriend’s Son Has PH This is Galen’s Story The world of PH is still relatively new to me in comparison to my age. I’m 42 now, and I’ve been actively involved in the lives of a…
Day 23 of 30 Days of PH Topic: A Devastating Diagnosis Will Become Riley’s Blessings This is Kelly’s Story @kellylt00 Our daughter Riley is 10 years old and was diagnosed with Pulmonary Hypertension in 2014, just 4 months after her 4th birthday. It was quite…
Day 22 of 30 Days of PH Topic: How I Cope With PH This is Margarita’s Story @marmarango My name is Margarita Arango. I am 39, and my PAH journey has been a long one. At 19, I experienced symptoms of rheumatoid…
