Photo courtesy of Jessica Apostoloff Day 20 of 30 This is Jessica Apostoloff’s (@xoxjessaxox) story: Odin is our seven-year-old son who has been living with pulmonary hypertension (PH) since birth. It’s an illness that he fights daily and one he does not allow to define how he…
30 Days of PH

Pulmonary Hypertension News’ 30 Days of PH campaign is publishing one story per day from someone who has been affected by the disease for PH Awareness Month in November. Read the full series here, and follow us on Facebook and Instagram for more stories like this, using the hashtag #30DaysofPH.
Photo courtesy of Shirley Craig Day 28 of 30 This is Shirley Craig‘s story: Pulmonary hypertension came into my life over 32 years ago … and I’m still here, surprised and very thankful! My family, faith, doctors, and PH family has…
Photo courtesy of Nitya Gupta Day 19 of 30 This is Nitya Gupta’s story: Hi, I am Nitya Gupta, a 30-year-old from New Delhi, India, living with pulmonary hypertension (PH), secondary to thalassemia. My life has never been a smooth ride because I have thalassemia major (a severe…
Photo courtesy of Charlita Hayward Day 18 of 30 This is Charlita Hayward’s (@haywardcharlita) story: I am a 33-year-old mother of two sons, 11 and 9, and am engaged. I live in Bermuda, and have idiopathic pulmonary arterial hypertension (IPAH). I was diagnosed in August 2020 after…
Photo courtesy of Kathy Groebner Day 17 of 30 This is Kathy Groebner’s (@momma_g4) story: In 2008, after five years of searching for a diagnosis, I was told that my daughter, Katie Grace, had pulmonary hypertension (PH). I’d thought all along that it was her heart, but…
Photo courtesy of Roger Bliss Day 16 of 30 This is Roger Bliss’s story: When I was getting short of breath several years ago, I thought it was just from being out of shape and older. I am 68 now. At first, I was treated for COPD. I…
Photo courtesy of Lauren Janzen Day 15 of 30 This is Lauren Janzen’s (@supa_yoopa) story: Hi, my name is Lauren. I’ve been a member of the pulmonary arterial hypertension (PAH) community for nearly 12 years. I was diagnosed after fainting at a high-intensity exercise class in January…
Photo courtesy of Sheila Ranftl Day 14 of 30 This is Tatiana Ranftl’s (@silvermami0531) story: After Christmas 2020, my condition had become terminal. My parents and I were told that I’d reached the end of the line. I fell apart hearing the words “heart failure.” I’d always been…
Photo courtesy of Susi Steppins Day 13 of 30 This is Susi Steppins’ story: Hello. My name is Susi Steppins. I knew something was wrong for a long time before I received my diagnosis. In fact, I’d felt for years that something was off. I would have bad…
Photo courtesy of Irene Chipounov Day 12 of 30 This is Irene Chipounov’s (@irinachipounov) story: Our 8-year-old daughter, Karina, was born with a right-sided congenital diaphragmatic hernia (CDH). She spent the first six months of her life in the NICU at Rady’s Children’s Hospital in San Diego,…
Photo courtesy of Kayla Marie Day 11 of 30 This is Kayla Marie’s (@itskayyyla) story: My name is Kayla. I’m 26 with a 4-year-old daughter, and I’m about to get married this December. I was diagnosed with pulmonary arterial hypertension (PAH) by a heart cath on…
Recent Posts
- Fight for better quality of life with PH by exercising your right to vote
- PAH rates, deaths show diverging trajectories in rich and poor nations
- CT scan marker could flag PH risk in pulmonary fibrosis patients
- Anxiety, depression symptoms linked to poorer exercise in CTEPH
- Living with pulmonary hypertension changed my definition of normalcy
