Day 21 of 30 Days of PH Topic: Power In Vulnerability This is Gerry’s Story @_gllangan When I was diagnosed in September 2018, I had severe IPAH and severe congestive heart failure. I was put on an IV infusion pump with Remodulin and it was…
30 Days of PH
Photo courtesy of Shirley Craig Day 28 of 30 This is Shirley Craig‘s story: Pulmonary hypertension came into my life over 32 years ago … and I’m still here, surprised and very thankful! My family, faith, doctors, and PH family has…
Day 20 of 30 Days of PH Topic: PH Angel Warriors Empowering Advocacy This is Julie’s Story @JulieKeeton The Pulmonary Hypertension Mom life seems like a lifetime ago, but the wounds of how it ravaged Weston’s tiny body are still so fresh in our hearts.
Day 19 of 30 Days of PH Topic: When PH Is In The Family This is Joanne’s Story @Zoanna6464 My PH story is a family one. My mom’s sister, Josephine, died at 23 in 1963. She was newly married, and her symptoms really came…
Day 18 of 30 Days of PH Topic: A Pediatric PHighter And Fundraising “Fore” A Cure This is Jayna’s story @jaynaw67 On August 21, 2012, our world was forever changed when our 14-month-old son, Jackson, was diagnosed with pulmonary arterial hypertension. A few weeks earlier,…
Day 17 of 30 Days of PH Topic: Treating Anxiety And Depression With Faith This is Ruby’s story When Covid began, my anxiety and depression were finally well controlled by medications. I was playing cards with four ladies once a week and would play with…
Day 16 of 30 Days of PH Topic: Self-Employment And PH This is Kathleen’s story @kathleen.s.photography and @rosecoloredmask When I graduated college 15 years after my diagnosis, I started a freelance photography business in San Francisco. Self-employment allowed me to make a schedule that accommodated…
Day 15 of 30 Days of PH Topic: I Have PH And Walked A 5K This is Aubrey’s story My Name is Aubrey Stout and I’m 39 years old. I was diagnosed with Idiopathic Pulmonary Arterial Hypertension on January 10, 2010, when I was…
Day 14 of 30 Days of PH Topic: Why Give Up Now? This is Jon’s story I have Pulmonary Hypertension. To be specific, I have secondary pulmonary hypertension due to a congenital heart defect, transportation of the great arteries. I also have congestive heart failure as a complication of…
Day 13 of 30 Days of PH Topic: Growing Up With PH This is Tatiana’s story @lolmamio531 My life before I was diagnosed is significantly different from how I have to live my day to day life now. I was diagnosed with Pulmonary Arterial Hypertension (PAH) at…
Day 12 of 30 Days of PH Topic: Life in 25ft. This is Tracey’s story @tracey.lawrence I was diagnosed with PH almost a year ago. The diagnosis came in rather traumatic circumstances with me going into respiratory arrest and heart failure following a routine IV…
Recent Posts
- PAH rates, deaths show diverging trajectories in rich and poor nations
- CT scan marker could flag PH risk in pulmonary fibrosis patients
- Anxiety, depression symptoms linked to poorer exercise in CTEPH
- Living with pulmonary hypertension changed my definition of normalcy
- AI tools may help doctors predict walking ability shifts in PAH

