Day 7 of 30 Days of PH Topic: Why I Raise Awareness This is Barbara’s story The main thing pulmonary hypertension patients have in common is being misdiagnosed for too long. Prior to my diagnosis, my husband, Chuck, took me to 14 doctors. I…
Day 6 of 30 Days of PH Topic: Organizing PH This is Jane’s story @Jane_Northrop My daughter, Nicole, was diagnosed with Eisenmenger’s Syndrome, PAH, and congenital heart defects in January 2010 at the age of 15, after being misdiagnosed her whole life. …
Day 5 of 30 Days of PH Topic: I Will Not Let PH Win This is Daniel’s story @nflxfl21 Hello, my name is Daniel York. I was diagnosed with Pulmonary Hypertension in 2007. It wasn’t until 2010 that I found out that my…
Day 4 of 30 Days of PH Topic: Staying Positive With PH This is Kathleen’s story @irishkathg I was diagnosed with Pulmonary Hypertension in May 2009. I was prescribed two oral medications but as the months passed, I got increasingly tired and short of breath. By…
Day 3 of 30 Days of PH Topic: Life Lessons From Charlie Brown This is Brian’s story @zipptang Charles M. Schulz, the creator of the Peanuts comic strip, penned this conversation between Linus and Charlie Brown. Linus: Nothing goes on forever.
November is a special month for many. It is a time to gather with friends and family, and share a meal, memories, current events, and hope for the future. Now is the season for reflecting on our lives and being mindful of what we have to be thankful for. Feeling…
Day 2 of 30 Days of PH Topic: Hidden Blessings My name is Dawn. I was diagnosed with Pulmonary Hypertension in April 2018. It took a little over 3 years to get the diagnosis of PH. I had so many tests over those 3+ years…
Day 1 of 30 Days of PH Topic: Planning for the Future This is Hannah’s story @hrolsn I’ve always been a planner; I dream about the future, I make lists, I research all my options and then I make it happen. At 19 years…
Second in a series. Read part one. In last week’s column, I shared the inspirational story of Cassidy Huff. Cassidy and my son Cullen became friends through the Make-A-Wish Foundation 12 years ago. When they met, Cullen had been recently diagnosed with pulmonary hypertension (PH). Cassidy has…
First in a series. Those in the pulmonary hypertension (PH) community often refer to each other as PHamily. They don’t live under the same roof, but they do have a strong understanding of what life is like for other patients and caregivers: endless doctor appointments, hospitalizations, procedures, and surgeries. Their…
Why do some people look younger the older they get? Not me! I turned 49 yesterday, but the woman in the mirror looks much older. I recently read an article that compared pictures of U.S. presidents from the year they were sworn in to the year they left the…
“Many have credited my husband, Brian, and me as the sturdy trunk supporting our little family tree. But a tree is only as strong as its roots, and ours are as strong as they come. Without the frequent and generous support of our parents, we never could have weathered the…
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