“Many have credited my husband, Brian, and me as the sturdy trunk supporting our little family tree. But a tree…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
One-sided relationships are unhealthy, so why have one with your doctor? It’s important for both patient and doctor to be…
When my son Cullen was diagnosed with pulmonary hypertension (PH), my husband and I would have gone to the ends…
Have you ever nodded off at an inappropriate time? For a moment, your body gives in to fatigue. Your heavy…
Learning how to take medications can be a hard lesson for children, but my son Cullen managed it like a…
On Aug. 7, my son Cullen celebrated his six-year anniversary of having a heart and double-lung transplant. In last…
When driving to doctors’ appointments for my son Cullen, we often listen to “The Danny Bonaduce & Sarah Morning…
If you are battling a chronic illness, odds are you have also battled health insurance. My son Cullen managed his…
It’s challenging to develop healthy coping styles upon receiving a shocking pulmonary hypertension diagnosis. My 8-year-old son, Cullen’s, PH diagnosis…
About 14 years ago, our oldest son, Cullen, started showing signs of disease. For two years, we lived with the…
In last week’s column, I discussed my son Cullen’s transition from pediatric to adult care at a medical…
How to Survive a Medical Move
It was a bittersweet experience when my parents sold my childhood home. I grew up and left for college, and…