It’s been a rough day. I change into my comfy clothes, pour a cup of tea, prop up my pillows,…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
When patients arrive at a medical facility, they often expect to be greeted with a helpful smile and comforting voice,…
Music deserves a note of thanks
Music is a universal gift given and received by people of all ages, ethnicities, and cultures. Its versatile melodies, rhythms,…
My 25-year-old son Cullen has been trying to deal with trying situations since he was a child. For years he…
It’s been a while. Do you remember me? I fell silent in June 2023 after sharing a column titled “…
I thought I knew how I grieve. I’ve lost many loved ones over the years, including those in the…
Second in a series. Read part one. According to the Online Etymology Dictionary, “emergency” is derived from the Latin…
First in a series. The rare disease community has an abundance of compliant patients and proficient caregivers. We…
If you can do the following things simultaneously then you are rare! Speak up and listen. Learn while you teach.
Physical, emotional, and mental exhaustion are common symptoms of pulmonary hypertension (PH) and caregiver burnout. Many of us…
Most people are good. I truly believe we’re better than what we ingest daily from the local, national, or world…
True love isn’t just found in fairy tales. Terese Tuohey met her Prince Charming, Timothy (Tim) Tuohey, at a dance.