Since my son Cullen’s diagnosis in 2008, I have imagined pulmonary hypertension (PH) as a toxic person rather than…
Colleen Steele
Colleen Steele was born and raised in New Jersey and received a Bachelor of Arts in English from Immaculata University in 1994. She lived in Washington State for 20 years with her husband and two sons. Her oldest child was diagnosed with idiopathic pulmonary arterial hypertension when he was 8. At 14, he received a heart and double-lung transplant. Colleen returned to New Jersey in 2023 after her loving husband of almost 28 years passed away. Colleen’s love for writing, experience advocating for her son, and determination to spread PH awareness inspired her to become a columnist and forum moderator for Pulmonary Hypertension News in 2019. In her column, “Life as a Caregiver,” Colleen is open and honest about caring for her son, his PH experiences, and life post-transplant. Her ambition is to educate and inspire others facing similar challenges and encourage them, through her column, to share their journey. If you are a caregiver and would like to be interviewed, contact Colleen at [email protected].
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Articles by Colleen Steele
It doesn’t take long after a pulmonary hypertension (PH) diagnosis to realize the disease will have an influence on the…
If you feel like pulmonary hypertension is messing with your mind, you are not alone. Over the years,…
Are you a leader or a follower? Do you work well with routine or spontaneity? Can you muddle through mundane…
The lives of pulmonary hypertension (PH) patients, transplant recipients, and their caregivers interconnect through our experiences and profound compassion for…
After receiving a heart and double-lung transplant in 2014, my son Cullen no longer has pulmonary hypertension (PH). Since then,…
I view marriage in a very spiritual and traditional way. It is one of the seven sacraments…
Can you imagine being denied something that could prolong your life? In a previous column, I interviewed adult pulmonary…
When my son Cullen was diagnosed with pulmonary hypertension, people often asked, “Can’t he just get a transplant?” As if…
In 2008, when my son Cullen was diagnosed with pulmonary hypertension, I started a health journal on the website…
My son Cullen was 8 when he was diagnosed with pulmonary hypertension (PH). He spent much of his childhood in…
“Why can’t she just get over it?” It would not surprise me if there were people asking themselves this question…