Living with a rare or chronic disease is never easy, as it creates many emotional, financial, physical, and social…
Jen Cueva
Jen Cueva lives in sunny San Diego, California, with her husband and daughter. A former nurse, her life took an unexpected turn in 2005 when she was diagnosed with group 1 pulmonary hypertension (PH). That experience reshaped her purpose, transforming her journey into one of advocacy, connection, and hope. As Manager of Partnership Relations on the Bionews Advocacy team, Jen collaborates with rare disease communities to build bridges and strengthen support systems for patients and caregivers. She also serves as a forum moderator for *Pulmonary Hypertension News*, where she writes a biweekly column exploring the emotional landscape of living with PH, from resilience and gratitude to the quiet power of community. Whether she’s sharing stories that uplift or offering words that remind others they’re not alone, Jen finds meaning in helping people feel informed, empowered, and seen. When she’s not writing or advocating, you’ll likely find her at the beach, on a coffee date, or simply enjoying the laid-back San Diego sunshine. Together, we PHight stronger.
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Articles by Jen Cueva
In August, I had the amazing opportunity to attend the Pulmonary Hypertension Association’s (PHA) International PH Conference in Indianapolis.
Companionship and physical intimacy are universal needs that play an important physical, psychological, emotional, and social role in our lives.
Fear and anxiety are often among the first emotions we experience after being diagnosed with pulmonary hypertension (PH) or…
Traveling with a rare disease such as pulmonary hypertension (PH) isn’t just about booking flights and hotels; it’s…
As we grow older, making new friends can become more challenging. Add a rare disease like pulmonary hypertension…
“How often do you experience heart palpitations or chest pains?” This question is one of the first I hear…
If you’ve recently been diagnosed with pulmonary hypertension (PH), this column is for you. I’ve been there, and…
Do you ever feel like a fraud because of your rare disease? For the past two decades while managing…
I have pulmonary hypertension (PH), which is difficult to manage, but it doesn’t affect only me. It also affects…
When health issues strike, they can be devastating, turning your world upside down in an instant. You can’t just wish…
Living with a rare disease like pulmonary hypertension (PH) presents unique challenges. Balancing work, your personal life, and…