Wendy Henderson,  —

https://vimeo.com/181671856 This Healthy Body, Healthy Mind video from Information Television Network, talks about symptoms and  the diagnosis process for pulmonary hypertension and how treatment for the disease has improved over the last two decades. Tyvaso is safe and well-tolerated by PAH patients a study finds.  Dr. Scott McFarland…

Currently, there’s no cure for pulmonary hypertension, but there are ways that you can reduce your symptoms and manage the disease to improve your quality of life. We’ve compiled a list of nine ways to self-manage your pulmonary hypertension based on information from the Mayo Clinic: Rest…

https://www.youtube.com/watch?v=IJn2UKLRVJk Pulmonary hypertension can strike anyone, at anytime as this video from Medicine X testifies. We meet a young man who used to play professional rugby and a mother who prove that age and physical fitness do not necessarily safeguard you against the disease. Paul and Kim explain how…

https://vimeo.com/170026811 This hour-long documentary from Information Television Network focuses on four rare diseases: pulmonary arterial hypertension (PAH), Pompe disease, acute intermittent porphyria and urea cycle disorder. PAH patients with rare disease subtypes in need of better research and treatment. Find out more. Rare diseases are often under-researched, difficult…

PHAware is celebrating PH Awareness Month this November by launching a series of podcasts called “I’m Aware That I’m Rare.” The podcast began airing on October 24 and will continue every Monday and Thursday morning for the rest of 2016. Discover more online resources for pulmonary hypertension…

In this video from UMMS Marketing and Comms, Dr. Guaram V. Ramani, an assistant professor of medicine, talks about the three groups of pulmonary hypertensions and the different treatment approaches for each group, along with the screening process and general symptoms. Find out more about testing for…

Pulmonary hypertension (PH) can affect patients of all ages. However, while there are different treatments available for adults with the disease, there are fewer treatments currently available for children who have PH. Find out more about pediatric pulmonary hypertension here.  Chloe Temtchine is no stranger to the…

In this phaware global association video, Dr. Dunbar Ivy from the Children’s Hospital in Colorado, explains why young pulmonary hypertension patients need an app. Study finds that pediatric pulmonary hypertension in premature babies is linked to severe bronchopulmonary dysplasia. Read more here. Being able to track the physical…

On Saturday, November 5th, the Blue Lips Foundation is hosting a Gala in Des Moines, Iowa. The event is expected to be attended by 350 people who will enjoy an evening of dinner, auctions and live music courtesy of local indie band The Nadas. Find out more about…

Eating a balanced diet is sensible advice for anyone, but it is even more important if you have pulmonary hypertension. The body needs vital nutrients and vitamins in order to keep healthy, fight infections and perform at its best. When you are already ill, eating well can help ease the symptoms…

https://www.youtube.com/watch?v=FADmuUHRPUQ This PHAssociation video introduces the “A Heart Cures” challenge. The Pulmonary Hypertension Association (PHA) has devised this social media challenge, starting November 1st to help raise awareness for pulmonary hypertension (PH) and allow the public to give thanks (in the month of Thanksgiving) to their support systems.

Meet Bella. As you’ll see in this Texas Children’s Hospital video, Bella is a lively and bubbly four-year-old who also happens to have had a double lung transplant. Read how pulmonary hypertension in newborns might be detected earlier using echocardiography. Bella was diagnosed with a rare…