Wendy Henderson,  —

Wendy is a proven blogger and social media manager who has helped to build online communities for businesses and organizations. She currently heads the website’s social outreach online through social media platforms such as Facebook, Twitter, and Pinterest.

Articles by Wendy Henderson

Explaining Pulmonary Arterial Hypertension and Other Rare Diseases

https://vimeo.com/170026811 This hour-long documentary from Information Television Network focuses on four rare diseases: pulmonary arterial hypertension (PAH), Pompe disease, acute intermittent porphyria and urea cycle disorder. PAH patients with rare disease subtypes in need of better research and treatment. Find out more. Rare diseases are often under-researched, difficult…

PHAware Launches Patient Podcasts

PHAware is celebrating PH Awareness Month this November by launching a series of podcasts called “I’m Aware That I’m Rare.” The podcast began airing on October 24 and will continue every Monday and Thursday morning for the rest of 2016. Discover more online resources for pulmonary hypertension…

Explaining Pulmonary Hypertension Groups

In this video from UMMS Marketing and Comms, Dr. Guaram V. Ramani, an assistant professor of medicine, talks about the three groups of pulmonary hypertensions and the different treatment approaches for each group, along with the screening process and general symptoms. Find out more about testing for…

The Importance of a Pulmonary Hypertension Research App

In this phaware global association video, Dr. Dunbar Ivy from the Children’s Hospital in Colorado, explains why young pulmonary hypertension patients need an app. Study finds that pediatric pulmonary hypertension in premature babies is linked to severe bronchopulmonary dysplasia. Read more here. Being able to track the physical…

Blue Lips Foundation Announce Gala Evening

On Saturday, November 5th, the Blue Lips Foundation is hosting a Gala in Des Moines, Iowa. The event is expected to be attended by 350 people who will enjoy an evening of dinner, auctions and live music courtesy of local indie band The Nadas. Find out more about…

7 Recipes for Pulmonary Hypertension Patients

Eating a balanced diet is sensible advice for anyone, but it is even more important if you have pulmonary hypertension. The body needs vital nutrients and vitamins in order to keep healthy, fight infections and perform at its best. When you are already ill, eating well can help ease the symptoms…

Pulmonary Hypertension Awareness: A Heart Cures Challenge

This PHAssociation video introduces the “A Heart Cures” challenge. The Pulmonary Hypertension Association (PHA) has devised this social media challenge, starting November 1st to help raise awareness for pulmonary hypertension (PH) and allow the public to give thanks (in the month of Thanksgiving) to their support systems.

Little Bella’s Lung Transplant Story

Meet Bella. As you’ll see in this Texas Children’s Hospital video, Bella is a lively and bubbly four-year-old who also happens to have had a double lung transplant. Read how pulmonary hypertension in newborns might be detected earlier using echocardiography. Bella was diagnosed with a rare…


A Conversation With Rare Disease Advocates