This is probably the hardest column I’ve written to date. It’s about how I deal with thinking about the future. I have been a planner my entire life. Whether it was daydreaming about the color scheme of my wedding when I was a kid, creating a detailed itinerary for trips,…
In last week’s column, I shared how the Make-A-Wish Foundation granted my son Cullen’s prodigious wish to meet President George W. Bush in 2008. To be on the receiving end of this amazing nonprofit organization is extraordinary. The foundation creates adventures that far exceed expectations. To be on the…
Living in the moment feels like an impossible feat while managing a chronic illness. It is hard to keep my mind on the present when so much of my energy is spent planning future appointments, scheduling upcoming tests and procedures, and waiting to hear about previous…
Nowadays, we pay for just about anything imaginable. But today is your lucky day! I’m offering free advice to those of you new to pulmonary hypertension (PH). Those who are “well-seasoned” may learn a few things, too. When I sat down to write this column, I thought back to my…
In last week’s column, I wrote about the challenges of making time for rest. This week, I want to address another significant lifestyle adjustment I’ve made since my diagnosis: my diet. A low-salt diet is recommended for those with pulmonary hypertension. Unfortunately, all of my favorite foods…
In 2008, my 8-year-old son was diagnosed with pulmonary hypertension (PH). Being told that Cullen had an incurable, life-threatening illness was traumatic. It was impossible to imagine that there would be happy days following that news. That year, two wish granters from the Make-A-Wish Foundation visited Cullen at home.
A few weeks ago, I wrote about planning happy moments amid the storms. I shared my excitement about a planned trip to San Diego with my husband. The city, my “little piece of heaven,” is one of my favorite places to be. Maybe the place is special to me…
Almost every time I am at the hospital, someone asks about my wrist tattoo. It is in a spot that not everyone can see, but is noticeable when I turn my wrist so nurses or doctors can insert an IV. I am often asked what it…
When a person is diagnosed with a serious condition like pulmonary hypertension (PH), they must alter their lifestyle. One of my biggest challenges has been learning to take it easy. I like to keep busy, and I tend to get a bit glum if I lie in bed all day…
My inner child awakens every fall. As the foliage starts to change into its glorious colors, I go to work decorating my home. And while sipping pumpkin spice latte, I think about what costume I will wear to this year’s party. On Halloween, you will find me on my porch,…
Traveling by plane can be stressful for anyone. Flying with pulmonary hypertension (PH) and other disabilities adds another dimension of stress and anxiety. My husband and I recently flew from Houston to San Diego. I was stoked about this trip and had been looking forward to it for months. My…
“Just go take a nap.” That’s the response I often receive when I tell someone I’m feeling really tired. Many people don’t realize that the degree of exhaustion I experience goes beyond what a nap can resolve. I wish I could crawl into my…
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