Growing up with more than one genetic condition, I never gave much thought to the long-term effects they would have on my body. It wasn’t until I became an adult and started taking control of my health needs that I realized how these genetic conditions contributed…
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*** “Pain comes in all forms. The small twinge, a bit of soreness, the random pain. The normal pains we live with every day. Then there’s the kind of pain you can’t ignore. A level of pain so great that it blocks…
I don’t know how to begin to explain the experience of being at the Donate Life Transplant Games of America. It’s been all I’d dreamed of, and so, so much more. To say that my emotions have overwhelmed me would not do justice…
Just the thought of surgery sends my anxiety into overdrive. After having over a dozen surgeries in my 27 years of life, some would assume I am a pro at it. Most people don’t realize the kind of anxiety that goes along with the word…
One thing that I have looked forward to throughout my transplant journey is the Transplant Games. I was fortunate to learn about the Donate Life Transplant Games of America just days after my surgery. The Games were in Cleveland,…
Mayo Clinic defines post-traumatic stress disorder (PTSD) as “a mental health condition that’s triggered by a terrifying event — either experiencing it or witnessing it.” Living with pulmonary hypertension and other cardiac and neurological conditions has caused my body to endure…
In June, I attended my first Pulmonary Hypertension Association Conference in Orlando, Florida. Sitting in a packed ballroom full of strangers, I had never felt more seen. Many of the faces around me were fellow PHighters, and we were all there for the same reason. I left…
Last week, I reflected on attending the Pulmonary Hypertension Association 2018 International PH Conference and Scientific Sessions for the first time since my heart-lung transplant. Click here to read that post. Attending PHA’s Conference was an intensely emotional experience for me. I think it’s…
There are days when having a chronic illness feels like too much to handle. Days when the physical symptoms and discomfort make it seem as though my own body isn’t connected to me, and the emotional toll is too much to bear. On these…
At the end of June, I was honored to photograph the Pulmonary Hypertension Association 2018 International PH Conference and Scientific Sessions in Orlando, Florida. This was the ninth PH Conference I’ve attended, but the first without my idiopathic pulmonary arterial hypertension. On…
My social life, based solely on my pictures online, may seem somewhat average for a 20-something-year-old. On my social accounts, you can find pictures of my friends and me; photos from the beach or of fancy drinks, and selfies from long car rides. What people don’t…
Chronic low oxygen levels, sleep-related breathing disorders, lack of proper circulation, and gas exchange impairment are all factors that have contributed to the neurological consequences that have been more prominent in my life recently. Pulmonary hypertension affects more than…
