It didn’t get old. I was still very much amused the third time I deposited a stack of postcards emblazoned with an illustration of the heart pulled from my chest seven months prior. Last February, I mailed 75 graphic Valentine’s Day cards to friends…
Columns
Think back to what it was like riding a carousel when you were young. I’m sure you raced for the best horse, and you wanted to be the first one buckled. When the carousel started, it may have been moving more slowly…
Marking Time After Transplant
Days We counted time in days after my surgery. The first few were a blur. “How many days was I asleep?” I wondered. I was lucky. Thursday night, I went into the operating room. Friday night, I got off the ventilator. (Courtesy of Kathleen Sheffer)…
Brad and I met because he commented on my blog, wherefore I visited his blog and read this piece in which he laments not connecting with a deaf classmate before he lost his own hearing.
“I’m fine.” Even though I know it’s a lie, sometimes it’s easiest for me to give this response when people ask, “How are you?” Why am I so accustomed to saying this even when I feel far from it? The reality is…
The paper crinkled beneath me as I sat on the edge of the exam room table while waiting for my pulmonary doctor. I was at the hospital for my quarterly appointment to do a few tests and check my health status. I felt…
My beginner’s driving permit expired this summer. Even though it is no longer valid, I still carry it around with me in my wallet. It serves as a sort of memento, a sacred artifact to remind me that I am 29 and still can’t drive. I…
“It’s all in your head.” I wish medical professionals knew just how damaging this comment is to someone with a chronic medical condition. These words can make those of us with chronic illness question our judgment of symptoms. It leaves us feeling angry and forces us…
Trusting myself enough to know when something is “off” with my body has been one of the hardest things about managing a chronic illness. Paying attention to how our bodies feel is physically and mentally exhausting. While figuring out our new normal, we…
PHighting Beyond Life Expectancy
Life expectancy is on my mind. Maybe it is because we are in the new year. Maybe it is my impending doctor’s appointments and tests that will update me on the progress I’ve made in my PHight with pulmonary hypertension (PH). Maybe it is because life is fragile…
Prepared for the Worst
On early morning drives to Stanford Medical Center, I blast upbeat songs and belt out inaccurate lyrics, my shih tzu giving confused looks from the passenger seat. I’m waking my lungs up in preparation for a 7:30 a.m. pulmonary function test (PFT).
I found myself on Tinder a few weeks ago, after swearing to my friends and family that I would never date again. Truthfully, I felt like I made an account as anthropological research. As a recovering hopeless romantic, the idea of swiping through a bunch of…
Recent Posts
- Wrist sensors reveal physical activity gaps for children with PH in study
- I’m learning how to live fully, not just survive, with pulmonary hypertension
- First patient enrolled in Phase 3 trial of PAH treatment IKT-001
- Living with chronic pain feels like climbing an endless mountain
- New data flags need for oxygen therapy as a major PH risk factor in ILD
