“If you’re paying out-of-pocket, Mr. Naple, that will be $1,600 for the one month of sildenafil. Is that something you will want to pay today?” the pharmacist inquired over the phone. You probably know my answer. Sildenafil is one of three medications I take to keep my pulmonary hypertension…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
Editor’s note: Charity Tillemann-Dick, soprano, former PHA spokeswoman, and two-time double-lung transplant recipient, reflects on her upcoming book, the writing process, and looking forward. This Q&A is a continuation of her interview ahead of the release of her book, “The Encore: A Memoir…
#fitfam #fitness #norestdays #NOEXCUSES. It is hard to get away from the world where social media feeds us with messages of fitness. There was a time in my life when I was consumed with thoughts of exercise and dieting. I learned the…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
Going back to the hospital in Fairfax, Virginia, felt in some ways like returning to the scene of a crime. I walked by the gift shop, toward the elevators that would take me down to the basement to Pulmonary Diagnostics. I couldn’t shake the sense that I had left something…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
The best product of my teenage angst was a series of abstract paintings titled “Attached to a Machine I through IV.” During my junior year of high school, I was particularly upset that my doctors had switched me from a tiny pump that fit into my…
Charity Tillemann-Dick is a soprano and the recipient of two double lung transplants. Told she might never sing again, Charity instead became a top-selling classical recording artist who has performed across the United States, Europe and Asia. She also served as…
“Hope is the only thing stronger than fear.” There are many days when I wholeheartedly believe in the power of remaining hopeful. Lately, this has been a struggle for me. There are some days when fear leaves me feeling crippled with anxiety. It’s important when fear seems…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read…
I’m tired just from typing these words. A rare disease like pulmonary hypertension doesn’t operate in a vacuum — side effects run aplenty. One of them is a feeling of chronic fatigue. Exhaustion seems ever-present in my life; like the shadow cast imposingly from the bag that carries my oxygen…
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