At the start of pulmonary rehabilitation, I was asked to write out a goal to work toward throughout the three months of sessions. Without realizing how unrealistic it sounded, I jotted down that I would like to run a 5K race. At this point, I was newly diagnosed…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
I was spending time with a friend, another long-term PH survivor, at a cafe last week, when she picked up a phone call. A few responses in, I gathered she was having the same conversation I’d had immediately after going active on the transplant…
I wasn’t feeling well two weeks ago after completely overdoing it in a heat wave and convincing myself that paddle boating was a good idea. (Spoiler alert: It wasn’t.) Feeling the need to take care of myself, I decided to accept defeat, cancel my plans for…
“I’m a grenade. And, at some point, I’m going to blow up and I would like to minimize the casualties. Okay?” ― Hazel Grace in the movie The Fault in Our Stars Aggravation, anger, frustration, sadness, hopelessness, bitterness,…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
“If you’re paying out-of-pocket, Mr. Naple, that will be $1,600 for the one month of sildenafil. Is that something you will want to pay today?” the pharmacist inquired over the phone. You probably know my answer. Sildenafil is one of three medications I take to keep my pulmonary hypertension…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
Editor’s note: Charity Tillemann-Dick, soprano, former PHA spokeswoman, and two-time double-lung transplant recipient, reflects on her upcoming book, the writing process, and looking forward. This Q&A is a continuation of her interview ahead of the release of her book, “The Encore: A Memoir…
#fitfam #fitness #norestdays #NOEXCUSES. It is hard to get away from the world where social media feeds us with messages of fitness. There was a time in my life when I was consumed with thoughts of exercise and dieting. I learned the…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
Going back to the hospital in Fairfax, Virginia, felt in some ways like returning to the scene of a crime. I walked by the gift shop, toward the elevators that would take me down to the basement to Pulmonary Diagnostics. I couldn’t shake the sense that I had left something…
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