This week marks four years since my life changed forever. On Dec. 21, 2013, I was officially diagnosed with idiopathic pulmonary arterial hypertension. My doctor told me I had a few years to live. Since then, I have been holding my breath, waiting for the other…
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“It’s just not magical anymore!” I cried that Christmas I was in sixth grade, tears falling onto my bed. While my younger sisters and cousins waited for Santa, I was going through an 11-year-old’s crisis. The magic of the holiday season seemed completely lost…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or…
I’m going to get this out of the way. There is no fun side of anger, regardless of how you spell it. I never considered myself an angry person. I saw myself as someone who overcame obstacles, was persistent, and fought and worked hard for the things I wanted…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
The cover of New York magazine’s Nov. 27-Dec. 10, 2017 issue features a child with cystic fibrosis (CF), whose mother, Jen Gann, is filing a wrongful-birth lawsuit. Her midwife failed to deliver the results of genetic testing that revealed…
It’s the most “wonderful time of the year.” The holiday season has officially begun. For those of us with chronic illness and pulmonary hypertension, it can be hard to look at this season as “wonderful.” Christmas will be here in just a few short weeks,…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
November was Pulmonary Hypertension (PH) Awareness Month. In honor of PH Awareness Month, I shared several patient profiles about special members of the PH community. Although it is December, I have one more profile I wanted to share. You can find the other PH…
I break into a sweat as I reach for my wallet, only to realize it’s not next to me in the car. What if I forgot to lock my car door last night? Did I just open my car door with…
This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or read it…
