Columns

Phaware Podcast: Christine Liles

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…

Phaware Podcast: James Hazlett

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…

Patient Resources from the American Thoracic Society

This past week, I had the honor of presenting my work at the American Thoracic Society (ATS) international conference. Renowned physicians, scientists, companies, and advocates within the realm of pulmonary and cardiopulmonary fields had an opportunity to network and hear about the state of much of…

The Blossom Tree and the Ice Storm

I was diagnosed with pulmonary hypertension over three years ago, toward the end of a cold December. It was only a couple of days after my diagnosis that a giant winter storm hit the town that I live in. Prior to this, winter storms had…

Staring Etiquette for Supplementary Oxygen

It’s inevitable. The stares from strangers will happen. It isn’t every day that someone sees a young, otherwise healthy looking woman carrying supplemental oxygen around in a backpack. I understand why people will give a double glance in my direction, but, when the stares are…

Phaware Podcast: Denneys Niemandt

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…

Phaware Podcast: Diego Gil

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or…

‘Wiggle Your Big Toe’

I was flipping through TV channels the other evening and came across one of the most motivational parts of “Kill Bill: Volume 1.” If you are a Quentin Tarantino fan, you may already know what scene I am referring to. The Bride has awakened from a coma-like state…

Phaware Podcast: Hall Skåra

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…


A Conversation With Rare Disease Advocates