Columns

Getting Stuck when Asking for Help

There is an inner dialogue that often goes on in the mind of someone who is chronically ill when asking for help. Ultimately, the outcomes of these inner conflicts are feelings of guilt, shame, and uselessness. It is hard to break out of this…

Phaware Podcast: Tilman Humpl, MD

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…

Phaware Podcast: Demos G. Papamatheakis, MD

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…

Phaware Podcast: Michelle Figueras

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…

Thoughts About Life Expectancy and Hope

I’ve previously discussed the moment that a pulmonary hypertension (PH) specialist waltzed into an examination room and slapped an expiration date on my back like a carton of milk. Unfortunately, this day  probably will be etched in my mind forever. I was so dumbfounded that I…


A Conversation With Rare Disease Advocates