Columns

Phaware Podcast: Why Kevin Lee Burger Started PH Support Group

This podcast series, created and produced by phaware, is a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly, or read this…

Finding Joy When Life is Hard

Living with pulmonary hypertension, sometimes life is hard. You may not feel well. You may have lost someone close to you. You may be in a funk. Maybe there’s no reason at all — life is just weighing heavily on you. For times like that, here’s a list of…

Phaware Podcast: Andy Sagraves

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast directly,…

An Ode to a Cherished Friend

I met my friend Drea years ago. We quickly bonded over both of us being childhood cancer survivors. We were able to speak freely with each other about what that meant. How we were so grateful for this life, but how it’s still difficult sometimes. We talked…

Three Things I’ve Learned as an Engineer Researching PH

Some may find it odd that, as an engineer, I research pulmonary hypertension. Even before delving into the definition of what it meant to be an engineer, I envisioned gears turning, buildings being built, and constructing airplanes and rockets to be launched into space. But after entering the…

When Others Don’t Understand How PH Impacts Our Lives

Sometimes (okay, probably more often than not) you meet people who don’t understand your illness. They take breathing for granted. They don’t even notice their lungs most of the time. They don’t understand how you struggle some days, gasping, dealing with chest pain, unable to do much. And they certainly…


A Conversation With Rare Disease Advocates