Columns

Phaware Podcast: Marina and Jovica

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly, or…

‘When Will I Learn?’ A Poem

“When Will I Learn?” is a poem I wrote to express my feelings about my own denial over my medical condition. In it, I write about what I have gone through medically as a result of my own denial. Toward the end, I move to what “I am starting…

Phaware Podcast: Robyn Doyle

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to…

Phaware Podcast: Oksana Kulish

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast…

Phaware Podcast: Pisana Ferrari

This podcast series, created and produced by phaware, is a regular guest feature on Pulmonary Hypertension News. It brings the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You can listen to the podcast, or read the transcript here.  …

Phaware Podcast: Morgan Nuchols

This podcast series, created and produced by phaware, is a regular guest feature on Pulmonary Hypertension News. It brings the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast, or read the transcript here.

Body Image and Chronic Illness is an Inside-Out Issue

Many people in the chronic illness community will talk about how their illness affects their mental health. They talk about grief, depression, health, anxiety, chronic pain, and post-traumatic stress disorder. What is not talked about as openly is the effect of chronic illness on our body image. I…

Phaware Podcast: Haley Lynn

This podcast series, created and produced by phaware, is being offered as a regular guest feature on Pulmonary Hypertension News to bring the voices and life experiences of PH patients, family members, caregivers, healthcare specialists, and others to our readers. You may listen to the podcast directly,…


A Conversation With Rare Disease Advocates