Columns

It’s not always easy, or delicious, to cook with a low-sodium flair as part of a safer pulmonary hypertension diet. Too much sodium can cause fluid retention because our bodies simply can’t process these things as well anymore. It also makes going out to eat…

I’ve always been a big traveler. I’ve zip-lined in an eucalyptus jungle in Hawaii. I’ve stood with my feet in the Gulf of Mexico. I’ve been at the top of the Eiffel Tower at midnight, and watched Paris glitter before me. I’ve seen the most gorgeous sunsets…

I met my friend Drea years ago. We quickly bonded over both of us being childhood cancer survivors. We were able to speak freely with each other about what that meant. How we were so grateful for this life, but how it’s still difficult sometimes. We talked…

Some may find it odd that, as an engineer, I research pulmonary hypertension. Even before delving into the definition of what it meant to be an engineer, I envisioned gears turning, buildings being built, and constructing airplanes and rockets to be launched into space. But after entering the…

Let’s face it: It’s HARD to eat right. Add pulmonary hypertension on top of that? (Eye roll.) When I was first diagnosed with PH my doctor recommended I remove certain things from my diet. Alcohol. Salt. Sugars. All I kept thinking about was how wine and bacon were my favorite…

Sometimes (okay, probably more often than not) you meet people who don’t understand your illness. They take breathing for granted. They don’t even notice their lungs most of the time. They don’t understand how you struggle some days, gasping, dealing with chest pain, unable to do much. And they certainly…

In continuation of my previous column leading to my diagnosis, I had just been told by my physician’s nurse to research pulmonary hypertension. To this day, I still claim that looking up pulmonary hypertension online was one of the worst mistakes I’ve ever made. There was article after article saying how the…

Whether you’re studying pulmonary arterial hypertension (PAH) or another disease, there’s always a sense of joy that comes from seeing potential new therapies finding success in the lab. As someone with a rare disease myself, I comb the literature to see what the next life-changing medication may be. While the…

In late March 2015, I caught a nasty case of bronchitis. It was a doozy, and just seemed to linger. In fact, I seemed to be getting only worse even after three rounds of antibiotics, days spent drinking hot water and honey, and sleeping constantly. My lungs felt as if they…