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July 19, 2019July 19, 2019

Small RNA Molecule May Slow Pulmonary Vascular Remodeling to Treat PAH, Study Suggests

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A tiny RNA molecule known as microRNA-410 (miR-410) was seen to slow the proliferation of endothelial cells in the lung and ease pulmonary vascular remodeling in a mouse model ... Read more

July 18, 2019July 18, 2019

European Initiative Targets Diagnosis, Treatment of Rare Diseases

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A new international consortium based in Paris, and funded largely by the 28-member European Union, intends to speed the diagnosis of rare diseases, while also accelerating the development of ... Read more

July 18, 2019July 18, 2019

Long-term Orenitram Use Can Help PAH Patients Walk Longer Distances, Extension Trial Finds

News, PAH News

Long-term use of Orenitram led to moderate but durable, and dose dependent, improvements in exercise capacity in pulmonary arterial hypertension (PAH) patients, results from an open-label extension trial show. These findings ... Read more

July 17, 2019July 17, 2019

Raising Levels of Nur77 May Help Halt Progression of PH, Study Suggests

News, PAH News, PH News

Increasing levels of the receptor Nur77 in cells lining the blood vessels of patients with pulmonary hypertension (PH) may help halt progression of the disease by enhancing the signaling ... Read more

July 15, 2019July 15, 2019

Left Heart Dysfunction Plays Key Role in Severe PAH, Study Suggests

News, PAH News

Left heart dysfunction may play an important role in severe pulmonary arterial hypertension (PAH), and should be monitored to optimize treatment, according to new research. The study, “Impact of ... Read more

July 12, 2019July 12, 2019

Extracorporeal Life Support Helps iPAH Patients Needing Lung Transplant, but Outcomes Remain Poor

News, PAH News

Extracorporeal life support improves the lung performance of people with idiopathic pulmonary arterial hypertension (iPAH) who need a lung transplant. But patients usually enter the transplant list at advanced stages ... Read more

July 11, 2019July 11, 2019

Implantable CardioMEMS System Useful in Predicting Heart Failure Risk in PAH, Study Shows

News, PAH News

Abbott’s CardioMEMS HF system — a wireless heart failure monitor — can be safely used to monitor blood flow (hemodynamics) changes and help predict the risk of heart failure ... Read more

July 10, 2019July 10, 2019

TAVI Heart Valve Surgery Has Fewer Complications for PH Patients, Analysis Shows

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In patients with pulmonary hypertension (PH) with aortic stenosis — when the heart’s aortic valve fails to properly close/open — undergoing a transcatheter aortic valve implantation (TAVI) surgical procedure ... Read more

July 9, 2019July 10, 2019

Macedonian Gaucher Activist Publicizes Plight of Rare Disease Patients

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The challenges Vesna Aleksovska faced when she decided a decade ago to help fellow Macedonians with rare diseases were so daunting, they would have scared off all but the ... Read more

July 8, 2019July 8, 2019

Study Links Pulmonary Arterial Pressure Greater than 30 mmHg to Increased Mortality

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An estimated right ventricular systolic pressure (eRVSP) — a measure of the pressure inside the artery that supplies blood to the lungs (pulmonary artery) — greater than 30.0 mmHg ... Read more

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