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June 24, 2019June 24, 2019

Poor Adherence to PDE-5i Linked to Adverse Effects in PAH Patients, Study Finds

News

Adverse effects are associated with poor adherence to phosphodiesterase-5 inhibitors (PDE-5I) as treatment for patients with pulmonary arterial hypertension (PAH) treated via an integrated care model at an academic ... Read more

June 21, 2019June 21, 2019

FDA Approves Generic Bosentan Tablets in US for PAH Treatment

News, PAH News

A new generic version of Actelion’s Tracleer (bosentan) developed by Teva Pharmaceutical was approved by the U.S. Food and Drug Administration (FDA) for the treatment of pulmonary arterial hypertension ... Read more

June 20, 2019June 20, 2019

Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

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Europe’s umbrella organization for 800 rare disease associations has developed a sweeping initiative to help the continent’s 30 million rare disease patients and their caregivers learn about their conditions, ... Read more

June 20, 2019June 20, 2019

Balloon Pulmonary Angioplasty and Adempas Both Effective for Inoperable CTEPH, Analysis Shows

CTEPH News, News

A new meta-analysis assessing balloon pulmonary angioplasty (BPA) and Adempas (riociguat) for treating inoperable chronic thromboembolic pulmonary hypertension (CTEPH) found both treatment strategies to be well-tolerated, and able to ... Read more

June 19, 2019June 19, 2019

Oxygen Manifesto, Part 2: the Devices (Advice from 3 Respiratory Specialists)

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Note: This is the second article in a three-part series written in collaboration with respiratory therapist Mark W. Mangus Sr., RRT, RPFT, FAARC, and oxygen expert Ryan Diesem. The ... Read more

June 19, 2019June 19, 2019

Chloride Channel TMEM16A May Be Therapeutic Target for IPAH, Study Suggests

News, PAH News

Patients with idiopathic pulmonary arterial hypertension (IPAH) have greater levels and activity of a chloride channel known as TMEM16A, which contributes to disease-related changes in pulmonary cells, according to ... Read more

June 18, 2019June 21, 2019

‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

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People with rare diseases know that the right government policies can make a big difference in the quality of their own lives, and those of their caregivers. But most ... Read more

June 17, 2019June 17, 2019

Opsumit Shows Promise for Portopulmonary Hypertension in Phase 4 Trial

News, PAH News

Treatment for 12 weeks with Actelion Pharmaceuticals’ Opsumit (macitentan) significantly improved blood vessels’ resistance in patients with portopulmonary hypertension without causing further damage to the liver, data from the PORTICO ... Read more

June 14, 2019June 14, 2019

Mouse Study Finds Causal Link Between Iron Levels and Pulmonary Hypertension

News, PH News

A new study in mice demonstrated that a lack of iron in muscle cells lining the circulatory system in the lungs — termed pulmonary arterial smooth muscle cells (PASMCs) ... Read more

June 13, 2019June 18, 2019

Exposure to Traffic-Related Air Pollutants Linked to Disease Severity in PAH, UK Study Shows

News, PAH News

Exposure to air pollutants may be linked to disease severity and other clinical outcomes in people with pulmonary arterial hypertension (PAH), a study shows. The study, “Traffic exposures, air ... Read more

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