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December 4, 2019December 4, 2019

PH Is Possible Complication of Bone Marrow Transplants in Children, Study Shows

News, PH News

Children who undergo bone marrow transplants could develop pulmonary hypertension (PH), which could lead to severe complications if not diagnosed and treated promptly, a retrospective study found. The study, ... Read more

December 2, 2019December 2, 2019

Study Suggests CPET as Way to Identify PAH in Systemic Sclerosis Patients

News, PAH News

Cardiopulmonary exercise testing can improve the ability of an algorithm to identify systemic sclerosis patients who have pulmonary arterial hypertension (PAH), a new study suggests. The study, “Cardiopulmonary exercise ... Read more

November 27, 2019November 27, 2019

Liminal Biosciences’s PBI-4050 Reduces Pulmonary Hypertension, Preclinical Data Show

News, PH News

New preclinical data supports the positive effects of Liminal Biosciences’s lead candidate, PBI-4050, in reducing pulmonary hypertension and the abnormal enlargement of the heart’s right ventricle muscle. The company presented its ... Read more

November 25, 2019November 25, 2019

Actelion Pulls Requests for Opsumit to Treat Inoperable CTEPH to Gather More Data

CTEPH News, News

Actelion Pharmaceuticals has withdrawn all ongoing worldwide requests for expanded approval of Opsumit (macitentan), a pulmonary arterial hypertension (PAH) medicine, to treat adults with inoperable chronic thromboembolic pulmonary hypertension ... Read more

November 22, 2019November 22, 2019

Access to Costly Therapies Top Concern of PH Patients in US, PHA’s Brad Wong Says

News, PH News

Like many rare disease charities, the Pulmonary Hypertension Association (PHA) was formed in 1991 by four women sitting around a kitchen table in Florida, hoping for a cure. Yet the ... Read more

November 20, 2019November 20, 2019

Antibody Able to Block Protein That Promotes PAH and May Bolster Existing Therapies, Study Finds

News, PAH News

An antibody that recognizes and blocks the activity of osteoprotegerin, a protein involved in the development of pulmonary arterial hypertension (PAH), was able to stop and even reverse disease ... Read more

November 18, 2019November 18, 2019

Bellerophon’s INOPulse Device Leads to Clinically Meaningful Improvements in PH-ILD, Early Data Shows

News, PH News

Use of Bellerophon Therapeutics’s INOpulse device led to clinically meaningful improvements in people with pulmonary hypertension associated with interstitial lung disease (PH-ILD), according to initial data from an ongoing ... Read more

November 15, 2019November 16, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

News

Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 13, 2019November 13, 2019

INOpulse Improves Physical Activity in PH-PF Patients, Early Trial Results Show

News, PH News

The vasodilator INOpulse increased physical activity and helped maintain higher levels of exercise in people with pulmonary hypertension (PH) associated with pulmonary fibrosis (PH-PF), preliminary results from a Phase ... Read more

November 11, 2019November 13, 2019

Infants with PPHN More Likely to be Readmitted to Hospital Within First Year, Study Reports

News, PH News

Infants with mild or severe forms of persistent pulmonary hypertension of the newborn, who were discharged from hospital, were significantly more likely to be readmitted or die within their ... Read more

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