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May 18, 2018May 18, 2018

Team PHenomenal Hope Provides Renewable Power to Puerto Ricans

News, PH News

The non-profit Team PHenomenal Hope is helping Puerto Ricans with pulmonary hypertension (PH) during the ongoing power outage crisis by providing portable solar panels and battery packs. The power ... Read more

May 17, 2018May 17, 2018

#ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

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The European Union isn’t doing enough to protect the 30 million or so people with rare diseases who live in its 28 member countries, officials meeting last week in ... Read more

May 17, 2018May 17, 2018

‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

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The National Organization for Rare Disorders (NORD) will celebrate the 35th anniversary of both the 1983 Orphan Drug Act and NORD’s founding at a dinner tonight in Washington, D.C. ... Read more

May 17, 2018May 17, 2018

Sarcoidosis Patients with PH in US Less Likely To Be Treated Than Those Living Elsewhere, Study Finds

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Clinical features of sarcoidosis-associated pulmonary hypertension are similar across patients in the U.S., Europe and Middle East, but treatment is more likely to be given to patients outside the ... Read more

May 16, 2018May 16, 2018

Scottish Agency Recommends Uptravi for PAH Treatment Through National Health System

News, PAH News, PH News

Scottish patients with pulmonary arterial hypertension (PAH) can now be treated with Actelion‘s Uptravi (selexipag) through the country’s National Health System (NHS) after a positive recommendation from the Scottish Medicines ... Read more

May 14, 2018May 14, 2018

Reata Recruiting More CTD-PAH Patients for Phase 3 CATALYST Trial Testing Bardoxolone Methyl

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Reata Pharmaceuticals is currently recruiting participants for its Phase 3 CATALYST trial assessing the effectiveness of bardoxolone methyl in connective tissue disease-associated pulmonary arterial hypertension (CTD-PAH). After analysis of ... Read more

May 11, 2018May 11, 2018

Enzyme Involved in Energy Production May Become New Target for Early Stage PH Therapy

News, PH News

A project investigating the role of a special protein called PFKFB3 in pulmonary hypertension (PH) has been awarded a $2.2 million grant from the National Heart, Lung and Blood ... Read more

May 10, 2018May 10, 2018

INOpulse Therapy for PH Associated with COPD to Enter Phase 2b Trial in US

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Bellerophon Therapeutics announced that is moving forward with a planned Phase 2b trial that will investigate INOpulse as a therapy for pulmonary hypertension associated with chronic obstructive pulmonary disease ... Read more

May 9, 2018May 9, 2018

Age, Certain Comorbidities Predict Outcomes in Idiopathic PAH Patients, Study Shows

News, PAH News

Age, ischemic heart disease, and kidney dysfunction are important predictors of outcomes in patients with idiopathic pulmonary arterial hypertension (IPAH), a Swedish study shows. The research, “Impact of age and ... Read more

May 7, 2018May 7, 2018

Blocking FoxM1 Gene Seen to Prevent Vascular Remodeling and PH Progression in Mice

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A gene called FoxM1 was seen to be an important regulator of the vascular remodeling process involved in pulmonary hypertension. It triggers the proliferation of smooth muscle cells in ... Read more

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