Living PHearlessly is goal for PH Awareness Month and beyond

The pulmonary hypertension (PH) community will be busy raising awareness and funds for research this November as they recognize Pulmonary Hypertension Awareness Month.   Leading these efforts is the Pulmonary Hypertension Association (PHA), the country’s oldest and largest nonprofit dedicated to the PH community. The…

Being Aware of Hope Is Half the Battle

A certain responsibility comes with being diagnosed with a rare disease. Because we know the details of our illnesses best, it is up to us to educate the world about them, so that greater knowledge and investment can be brought to our communities. This leaves me wondering what story I…

How Our Stories Can ‘Spark Awareness’ of PH in Congress

I’m grabbing the megaphone to raise awareness and advocate for pulmonary hypertension (PH). And I invite you to join me. Through advocacy, we’re able to make changes in the United States’ democratic system of governance. I believe change begins with the advocates and the storytellers who share their lived experience…

Reflections From a Thankful Caregiver

Are you a pulmonary hypertension (PH) caregiver? If so, then November has been your special month. Thanksgiving is celebrated this week in the U.S., and all month there has been a focus on PH awareness and on many of you. That’s right — on many of you — because…

30 Days to Be Thankful and Aware

November is a special month for many. It is a time to gather with friends and family, and share a meal, memories, current events, and hope for the future. Now is the season for reflecting on our lives and being mindful of what we have to be thankful for. Feeling…

Why I PHight: Raising Awareness This November

Did you know that I have a new appreciation for street corners? I remember when I would attempt to cross the street as a red No. 2 flashed into a blinking hand, and my foot would touch down on the opposite curb just as a car flew by.

Pulmonary Hypertension Awareness: Being a PHighter

November was Pulmonary Hypertension Awareness Month and even though the month is already over, it doesn’t mean we should stop spreading the word and awareness for PH. For those who don’t know what pulmonary hypertension (PH) is, let us explain: PH is a rare, life-threatening heart and lung…

6 Ways You Can Raise Awareness For Pulmonary Hypertension

Being diagnosed with pulmonary hypertension can be extremely difficult. Readjusting your life after a diagnosis like that can be tricky, but there are several things you can do. Educating yourself is one thing you can–and should–do. November is Pulmonary Hypertension Awareness Month and there are a lot of ways…